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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Sun May 16th, 2010 19:46 |
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Congrats Morag, and while I wish you were well and wish that all of us didn't have to meet this way, having you here has made life and this MP journey better for many of us. Congratulations on keeping working and moving along on your MP journey.
Hugs, Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Pipistrelle
Member
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Posted: Sun May 16th, 2010 22:47 |
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Thank you Claire,
I reciprocate your kind words entirely  . Yes, life is a funny old thing isn't it, and whilst none of us have ever wanted our Th1 conditions, there are definite pluses. I shall always be grateful for the MP, not just for helping me recover my health, but for the great blessing of MP friends - who understand what a slayride we are on!! Death to the bugs (cue music for the chariot scene in Ben Hur).
Morag 
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Freddie Ash
Member
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Posted: Mon May 17th, 2010 00:29 |
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HI MORAG
This is Fred in WV. Congratulations in making it 2 years on the Marshall Protocol. It is not an easy task to make that far. Some have quit very soon into the MP. I do read most of your posts and keep up with your phase 2/3 study site. Keep up the great work!!!
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Pipistrelle
Member
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Posted: Mon May 17th, 2010 07:48 |
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Thanks Freddie,
Your good wishes mean so much . Here's to us all on the journey to health!
Morag
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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HeatherK
Member
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Posted: Mon Sep 20th, 2010 12:41 |
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3 years today !! Sept 20 2007, I took my first Olmesartan; Whew! What a journey this has been !
I started in full faith in the science behind the MP, knowing I would feel worse before I felt better. I just did not know how worse but sooo Thankful for the MP. It DOES work people !! I have had more energy in the past 3-4 months than in the past 8 years. Yes it was a pretty 'dark' road for quite a while, but I am nearing that light at the end of the tunnel.
I will still have some rough days ahead as I am abt to start Phase 3. But having this time over the summer of 'coasting' a bit has allowed me to start to enjoy a bit of life outside the home again. The realization of recovery comes slowly but surely.
I seem to be celebrating this anniversary with... a sore throat/head cold! The First time I have had a cold on the MP !! I have had 5 outings in the last 7 days and may have over done it, but it was fun ! Today I am recuperating , resting with a box of kleenix nearby.
So ThankFul to my God who brought me in touch with the Marshall Protocol !
ThankYou again, Dr. Marshall !
Gratefully, Heather
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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Deb Grabetz
Support Team
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Posted: Mon Sep 20th, 2010 14:10 |
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Heather,
Congratulations to you....3 years anniversary!!!! Wow, what an accomplishment to have come so far....and yes, you're right about your journey it is a long one to get to this point, yet you have done it!!!
God Bless your days ahead as you continue to improve! Hugs Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Mon Sep 20th, 2010 20:10 |
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Congratulations Heather! I hope you continue to see more and more energy!
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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JanEE
Member
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Posted: Tue Sep 21st, 2010 00:56 |
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Congratulations Heather! Three years on the protocol is one mighty accomplishment! When you're all done with this, and completely well, you can celebrate by jumping into your creek as your daughter-in-law did in her wedding dress---only you can wear your full MP regalia. I can almost picture it. I hope someone captures it in a video.
Sorry about the nasty cold, but as you say---sometimes it's worth it. I've had times like that myself.
Hugs and the best of health to you,
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Freddie Ash
Member
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Posted: Tue Sep 21st, 2010 12:48 |
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HI HEATHER
This is Fred in WV. I have said it once in your phase 2/3 site but here it is again:
HAPPY 3 YEAR ANIVERSITY ON THE MP
Way to go girl, you have come a long way baby and you have made a lot of improvements.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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HeatherK
Member
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Posted: Tue Sep 21st, 2010 13:56 |
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Thanks Deb, Claire, Jan and Freddie! On reflection when I started the MP, 3 years seemed a crazy way off , yet miracles of miracles I am here, and really cannot remember too much of the blurry , dark days, just glimpes here and there to make me appreciate where I am now and where I have come from.
I had the privilege yesterday to tell another of the extramural nurses (who visit me at home to draw blood) abt the MP. She was quite interested, young, understood what molecular biology is, concerned abt the strong antibiotics they use in the ICU unit where she works p/time and wonders abt the long term effects of them. She was also totally amazed at the whole Vita D issue. Our country here is totally pushing Vita D supplementation like crazy ... anyways that a topic for another thread....
Thanks Again
Heather
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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k
Member
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 125 |
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Posted: Thu Sep 23rd, 2010 10:52 |
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Congratulations HeatherK, I am so pleased for you!
I am approaching my 3 year anniversary.... And it's been a bloody hellish road but geeze, I seriously cannot believe how good I feel lately. I mean that, I seriously cannot believe it. I had given up hope that I would feel this good again... and the best of all... my improvement will continue! Amazing!
Congratulations, well done, and keep hanging in there!
All the best,
k
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ME/CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil hydralazine Ph1Oct07 25D50Jul07 25D23Oct07 25D13Jan08 NoIRs cover-up low lux home lite exp r/t to work Ph2Feb08
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HeatherK
Member
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Posted: Thu Sep 23rd, 2010 13:39 |
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ThankYou K ! Can we ever relate, both abt the same stage, and interesting too with the same diagnosis... sooo happy for you too !!
It has been so rough, I have been hesitant to recommend the MP to anyone older than myself, and decided to let my experience/recovery be the proof to others that this does work, and friends/family are expressing amazement now and sure gives credit to the whole Vita D debate to them....
And to further celebrate my anniversary week, yesterday afternoon was a warm beautiful/overcast September day, I actually got in my car and drove myself to town to the nearest convenience store, bought a bottle of water, and came home, enjoying the local scenery, as our fall colours are starting to emerge. This was a huge milestone for me to feel well enough to do this and have the confidence as well. I was only gone 32 minutes , but what freedom !!! Of course I went fully protected, using 2% Noirs, hat and leather coat, and zinc cream. I sure surprised my husband last night, with this special bottle of water !!!
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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k
Member
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 125 |
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Posted: Fri Sep 24th, 2010 12:21 |
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That's WONDERFUL Heather! I TOTALLY understand what you mean about "the freedom". It's just amazing isn't it!
At times walking (along the street etc) I have a huge beaming smile on my face.... just cos I'm so happy to be walking so freely, effortlessly.... A joy!!!
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ME/CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil hydralazine Ph1Oct07 25D50Jul07 25D23Oct07 25D13Jan08 NoIRs cover-up low lux home lite exp r/t to work Ph2Feb08
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Sat Sep 25th, 2010 03:26 |
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While I still have little energy and moments where moving around makes me feel like I am going to faint, there are days where I have very good moments. Yesterday, I went to the farmer's market briefly, then to the movies, and then to the grocery store for a few items.
As I walked out of the movie theater, enjoying the early evening weather (no jacket, and b/c it was almost dark, no NoIRs), I was beaming... so glad to be alive and feeling well enough to head to the grocery store.
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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HeatherK
Member
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Posted: Sat Sep 25th, 2010 04:35 |
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That is so Great Claire! I know what you mean! Its the JOY of 'emerging from the tunnell' even though we still have the down days. I did have a couple of hours this afternoon that I was light headed, and had to get reclined and rest to battle that faint head. But tonight I was fine, made a cake, and vacuumed a room. And I had already cleaned a bedroom this morning .....
We were not this active last year !!
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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Cynthia Schnitz
Support Team
| Joined: | Wed Apr 8th, 2009 |
| Location: | Arizona USA |
| Posts: | 65 |
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Posted: Thu Oct 28th, 2010 06:36 |
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Two years today. At this point, I have as much energy and stamina as I had pre MP, but that wasn't all that much, so it is all gravy from here on out. I have both my 1 year and my 2 year anniversary posts up on the Alumni Forum. I wanted them to be together, which is not practical here. I also redid my 1 year anniversary post to make it and the new one nothing but single line entries. It appears that brain fog of those trying to read it made it a difficult or impossible chore. Well, maybe it wasn't my best style too.
I lowered my ABx for a vacation, and with some very interesting effects from light exposure and too much exercise, the IP built, and I am only now starting to move my ABx up again, so maybe I'll get some more lethargy again. But I think I will try to keep the ABx low enough to prevent going back to that. I have 2 years of deferred labor to catch up on.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10ng/ml 10/10, (preMP 125D/25D=47/43) | My progress
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Thu Oct 28th, 2010 06:40 |
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Congrats Cynthia and best wishes in finding the right abx dose for catching up!
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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k
Member
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 125 |
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Posted: Thu Oct 28th, 2010 08:08 |
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I updated my Alumni thread with my 3 year anniversary yesterday:
http://www.marshallprotocol.com/view_topic.php?id=12185&forum_id=30&jump_to=202220#p202220
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ME/CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil hydralazine Ph1Oct07 25D50Jul07 25D23Oct07 25D13Jan08 NoIRs cover-up low lux home lite exp r/t to work Ph2Feb08
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Freddie Ash
Member
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Posted: Thu Oct 28th, 2010 13:32 |
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HI CYNTHIA & K
This is Fred in WV. I want to wish you both a great big
HAPPY 2 YEAR ANIVERSITY TO CYNTHIA
HAPPY 3 YEAR ANIVERSITY TO K
for making it this long doing the Marshall Protocol. You both are doing great and keep up the great work and MPing.
Remember, we are all in this together and I am pulling for us
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Bobbie
Member
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Posted: Tue Nov 2nd, 2010 14:31 |
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Happy Anniversary Cynthia, Heather, and K!
Sorry to be a little late in my congratulations! I have been busy with "life." It is so great to hear of all of your improvements. I will be having my 3-year anniversary in February as well so I can totally relate to the "emerging from the tunnel" and feeling much more "normal" again. It's so great to have energy again!
Heather, we were definitely not this active last year. Looking forward to more improvements in the years to come!
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CFS IBS atrial fib 125D94 25D60 Ph1Feb08 no meds NoIRs cover up work at home low lux cut food 25D39(Feb08)Ph2May08 25D21.1(June08)
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