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JanEE
Member
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Posted: Wed Oct 15th, 2008 21:52 |
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Deb, I can totally relate to how you are feeling about not being able to do your job. I was so totally involved with gardening and landscaping that having to give it up was awful. I loved being outdoors in the sunshine, not to mention working with plants and nature. I had to give up two wonderful jobs that I'd had for years. My own garden/yard/landscaping was just beginning to come into it's own, and now it's a mess after three years of almost total neglect. I went out more last year than this year, as I haven't had the energy this year---and was told by Meg that I should curtail some of the time spent out there.
I also worked for a bedridden woman at a local assisted living facility and had to quit that job because of no energy combined with practically an entire wall of windows which made me so dizzy, even with the blinds shut, I couldn't function. I loved her so much and worked for her for seven years. One day when I went to visit her this last February she was gone. Her son had not even seen fit to call and tell me she had passed away. I was heartbroken, but I still have some wonderful memories.
Others here have suggested that you might have some new and wonderful opportunity awaiting you. I think that's true. It has been said that knowledge is never lost, and I have found that past knowledge has always contributed to things I've done later. Considering that, and your great attitude about the undertakings in your life, will make whatever you choose to do later an experience that you will love and be great at.
Michele, your cat sounds like one very intelligent animal. It sounds like his abilities much more than make up for his annoyances, but I can also relate to your grumpiness when he wakes you. Mine does that too. She always knows when it's time for me to get up because of my alarm going off to take my Benicar. If I choose to go back to sleep for another hour she will sometimes sit right next to my head, staring at me and waiting for me to wake up. If I move she will start to paw at my hand to pet her---or meow loudly if she thinks I'm sleeping too long. She has even been known to crawl up on my back and go to sleep herself. The worst though, is when she throws up on the carpet in the middle of the night. It's only happened about three times in twelve years though, so I can't/shouldn't complain. By the way, I have a 'thing' for cat's names. What is your cat's name? Sending you both some hugs.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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coolbeans
Health Professional
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Posted: Fri Oct 17th, 2008 10:06 |
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My cat Frankie jumps on my bladder when she wants breakfast and I happen to have the day off and am trying to sleep in. She jumps down from the headboard and makes a direct hit every single time. Now how did she ever figure out my internal anatomy?
Jan
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RA FM allergy asthma GERD MCS FBD IBS lichensclerosus 125D59 Ph1Jun06 ModPh2Aug06 Ph2Jan07 Ph3Jun07 tramadol diazepam NoIRs lite exp r/t work cover up 25D4
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coolbeans
Health Professional
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Posted: Fri Oct 17th, 2008 10:18 |
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Oh holy Hanna, I forgot my "grump"!
I have a co-worker who overlaps her shift with mine by 15 minutes every day. She announced the other morning that something will have to be done about the low light situation because her night blindness is getting worse and she doesn't see why she should have to go to a doctor to get documentation for an accommodation to return the lighting to where it is supposed to be anyway.
I told her since she is always at least 10 minutes late, we are really only talking about 5 minutes and she should just suck it up . Passive/aggressive I am not. But she is and I am now getting the "silent treatment" from her. I haven't had to put up with that since my divorce 16 years ago.
Jan
Jan
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RA FM allergy asthma GERD MCS FBD IBS lichensclerosus 125D59 Ph1Jun06 ModPh2Aug06 Ph2Jan07 Ph3Jun07 tramadol diazepam NoIRs lite exp r/t work cover up 25D4
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expate
Member
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Posted: Fri Oct 17th, 2008 16:23 |
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| Wow, that's really amazing. I'd hate to be involved in your co-worker's life for more than 5 minutes daily. She sounds like a real case.
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Knochen
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| Joined: | Thu Feb 23rd, 2006 |
| Location: | USA |
| Posts: | 380 |
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Posted: Fri Oct 17th, 2008 16:45 |
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But she is and I am now getting the "silent treatment" from her.
Hmm, silent treatment? Sounds like Problem Solved.  If not, tell her to get a flashlight or go through official channels, otherwise it's just fibrous feces.
I've never suffered fools gladly, if at all. And anybody in the healthcare profession who isn't willing to bend a bit to accommodate YOUR well established needs has some real problems.
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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Michele MBK
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| Joined: | Fri Jan 4th, 2008 |
| Location: | Virginia USA |
| Posts: | 69 |
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Posted: Sat Oct 18th, 2008 01:22 |
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Hi Jan,
My cat's names are Banjo and Gracie. One of my sons named them when they were kittens and he was 5.
Banjo plays the piano, flushes toilets, turns on water, and pushes open the screen door.
Gracie...is not graceful! She is the clumsiest cat I've met. She more than makes up for that because she is the sweetest girl kitty. She loves to sleep on me. If she gets settled right I can actually sleep with her on me. She's a lap cat, too. Though, she won't allow herself to be held. Banjo "puts up with it if he absolutely has too!"
The two of them play soccer together with ice cubes. Whenever we get ice from the freezer they are right there begging for a cube.
(You may get the idea they are training their humans very well!)
I really should get some video of Banjo opening the screen door and playing piano. There are a lot of funny cat clips on YouTube and he'd fit right in!
BTW, these two are brother and sister. We adopted them from Cat's Cradle.
They both love water which amazes me. When ever we are in the bathroom we have to turn the water on to a very slow stream so they can play in it and get a drink. They do have one of those water fountains for pets that filter and circulate the water.
Did I mention we, their humans, are well trained! 
Have a good weekend all!
Michele
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Lyme / RA 125D30 25D16 Advil / Vicodin or Celebrex low lux home NoIRS cover up Ph1May08 Ph2Sept08 May 09D25:6
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expate
Member
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Posted: Sat Oct 25th, 2008 16:41 |
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Cute cats! My orange tabby, Clementine, has taken to drinking from the faucet. It took her so long to figure it out. She wanted it so badly, but just couldn't get the right angle. I suppose she's a little slow in some departments. 
Well, I had blood drawn a few days ago for updated D levels. Fingers crossed. I mean, I went to New Orleans and didn't eat any seafood! I brought my own homemade bread with me. Please, please let "D" be for "down" as in levels.
Oh, and get this, I met Famka Janssen   last night and she gave me advice on what she uses to block sun for her skin, Colorescience. She says it really works.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Sat Oct 25th, 2008 17:04 |
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I love this thread! We need this. Grumping happens even to regular people, but add grumpy IPs and challenges from being sick? Yeah!!
I thought I'd be well enough to go back to college this Fall, Deb. Wasn't. Tried to start an Etsy business. Couldn't. Tried to finish reading our Book Club book. Couldn't.
So I'm knitting.
Over and over and over as I have to rip out what I did and start again due to mistakes from brain fog.
The journey takes as many steps as it's going to take to get there, eh? *sigh* If only we could be speed racers.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Sat Oct 25th, 2008 18:00 |
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Well, I'm grumpy this morning and yesterday as well. Nothing I will grump about here.
However, I am trying the knitting thing and I knit a perfectly hideous bluejean blue triangle scarf while wearing NOIRs (the color is beautiful...it was my knitting that was hideous) , er, Claire have you ever heard that NOIRs are blue blockers? What a mistake!
Lots of dropped stitches that I didn't see until I bound off  (with no idea how to fix them but with needle and thread--that matched--couldn't make head way with the knitting instructions). At least the scarf bunches up around my neck and hides the worst of my errors.
Today I'm starting a regular scarf in brown without the NOIRs in lower lighting.
Still grumpy. Hope the knitting takes it out of me.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Sat Oct 25th, 2008 19:42 |
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Knitting is supposed to be peaceful. I'm missing 2-3 minutes memory time from the stroke in '92. No problem if knitting something straight forward, but I'm doing a pair of socks and trying a newer way of making the heel flap flatter so it's more comfortable when I wear boots. And I tried to learn how to do two socks at once on two pairs of circular needles but had to quit for the same reason.
2-3 minute memory gap added to brain fog does not make for peaceful knitting. It's one of Life's great truths that they should tell you in high school, but don't. When you are born, there should be a manual given out. Don't hook up with bad people. Don't do drugs. Don't take d supplements. And knitting is not necessarily peaceful, but do it anyways because it's good for you.
After all, if your hands are full of yarn and needles, the worse you can do to someone else is to strangle or stab them. And most time, you are so mesmerized by the yarn colour, texture and the evolving project, who would do such a thing to someone else???
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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magsmom
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| Joined: | Thu Aug 7th, 2008 |
| Location: | Oklahoma USA |
| Posts: | 45 |
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Posted: Sun Oct 26th, 2008 02:53 |
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How this one sound - from someones (?) thread recommending the movie 50 first dates with Adam Sandler - I went to blockbusters, (first time in 7 years) to rent the movie. Of course I had to have assistance finding it and all.
After watching the "really good" movie - I phoned a friend to see if they would like to watch it before its due back date. I made special trip to their house to drop of the movie so they too could watch it and they agreed to take the movie back to blockbusters.
During a phone conversation we discussed the movie and this friend said they liked it. Well today they call me from blockbusters because the movie was missing from inside the case & said I must have forgotten to put it back in the case.
Which I fell for at first & then said WAIT - you said you watched it so you have it. They then said - they only thought that they watched it - and the movie we discussed was so similiar we both thought it was the same one. They had actually watched several the same day and did not realize that I had brought over the empty case.
Well - I found the movie still in my DVD player. Both of us are on the MP - - Heavens!! The other day, I left the house ( with this same friend) to run business errands. When we returned to my house I found that I had left my garage door open. I would like to blame the common denominater on her!!! But - I'm sure it is the MP. Surely it is not ME !! Hopefully it is just the MP. . .
I am afraid there is more of this sort to come - - Good Heavens! Magsmom.
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FM/Fatigue/Lyme/TMJ/Trigeminal Neur/Migraine/Degen Disc Dis/Sciatica/OsteoArth/Myalgias 125D52.2 Ph1Aug08 Benicar NoIRs low light home exp rt work aprx 30min 25D32.4
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Sun Oct 26th, 2008 08:40 |
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Me grumping again. Now I have a perfectly hideous beginning of another scarf that I am going to remove from the needles and take to a knitting lesson and say, "Look! How do I prevent THAT?! and THAT?! and THAT?!"
Let me tell you knitting with ribbon, though the twisting is difficult, is so much easier than knitting with yarn, particularly when adding stripes of color.
Next project: I'm starting with one color at the end of the scarf, changing to the dominant color, then changing back to the other color at the other end of the scarf. THAT I can handle. I think....
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Sun Oct 26th, 2008 10:50 |
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| Me again! I forgot to mention that my car was sideswiped on Wednesday evening (just the back bumper, but enough that it needs buffed and repainted)--no note, nothing. And I hadn't had the car in my possession for even a week since it had been at the repair shop for 12 days resulting in a bill that was just under $1000. Feeling a little stressed here. Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Support Team
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Posted: Sun Oct 26th, 2008 11:58 |
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Claire,
I'm sorry to hear about your car---and yes a note would have been nice! What happened to those days of responsibility to others???
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Pipistrelle
Member
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Posted: Sun Oct 26th, 2008 11:59 |
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How annoying, Claire. I had two bumps in one day in May, just before I started the MP. Someone drove into the back of me at traffic lights, then later that day I had brain fade, chose the wrong lane and caused a collision - no one hurt except my pride, but it was a yet another incentive to get going with the MP. But at least the repairs were dealt with in one go.
My big grump is people expecting me to be better at nearly 6 months on the MP, and telling me how I should be feeling, when they know nothing about the MP! A friend last night told me that I am much better than I was this time last year. No I'm not! Not yet. But I will be.... given time.
In a quick fix medical culture it is difficult I guess for people to really comprehend the timescale of true healing as opposed to palliation.
There is another form of social pressure which is the positive thinking brigade who tell you that if you just upped your mental game you would magically get better. Think positively enough, raise your vibration and the bugs will somehow disappear. Despite explanations, they don't understand that IP has to be undergone, and that it waxes and wanes, and that changes of abx further down the line will elicit more IP. I'm not going to squander my limited energy arguing it out with them. Yes, we are spiritual beings but the laws of science and nature apply as well.
Like many of us, I use positive mind talk to get me through the tough times, but I'm not going to pretend treatment is easy all of the time. That would be dishonest and potentially dangerous.
But the outcome of perseverance will be worth it! It just takes time....
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 797 |
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Posted: Sun Oct 26th, 2008 12:15 |
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My big grump is people expecting me to be better at nearly 6 months on the MP, and telling me how I should be feeling, when they know nothing about the MP!
I know. I have a very dear caring friend who asks me at least twice a week, "so are you feeling any better yet?"
SIGH.
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Deb Grabetz
Support Team
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Posted: Sun Oct 26th, 2008 12:46 |
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Pipistrelle wrote: There is another form of social pressure which is the positive thinking brigade who tell you that if you just upped your mental game you would magically get better. Think positively enough, raise your vibration and the bugs will somehow disappear. Despite explanations, they don't understand that IP has to be undergone, and that it waxes and wanes, and that changes of abx further down the line will elicit more IP. I'm not going to squander my limited energy arguing it out with them. Yes, we are spiritual beings but the laws of science and nature apply as well.
Like many of us, I use positive mind talk to get me through the tough times, but I'm not going to pretend treatment is easy all of the time. That would be dishonest and potentially dangerous.
But the outcome of perseverance will be worth it! It just takes time....
Oh Morag, How well you defined those in our lives, who think that a positive attitude is a cure all! My mom has this sort of an attitude and has been at times a real challenge for me during my recovery. If the blind could see, they would see, If the lame could walk, they would walk and if those of us with Th1 could continue living normal lives---why in the world would we choose to live otherwise---It's OK though---after awhile, the opinions of others quickly become less important and the reality of recovery takes over our own thoughts and actions! Wasting less of our energy on, as you say, arguing about it all!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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expate
Member
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Posted: Sun Oct 26th, 2008 16:47 |
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Yes, a very difficult balance for me to find in this long road. To keep going, I to have a postitve attitude/brave face. But when I lose it or let it down, I don't know. It's just hard for others to understand. I'd find it hard to live with me.
And I am not nearly as symptomatic as many here.
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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expate
Member
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Posted: Thu Nov 13th, 2008 01:04 |
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Sooo... if I have a Grump Stump, perhaps I should add balance and create an Elation Station.
I got my 25-D level back (after a three week wait) and it's down to 29!!! I know that's still high, but it's downward progress from 34 and 38 initially.
I never thought I'd find myself back in my 20's.
*skips off to update sig line*
 dette
Last edited on Thu Nov 13th, 2008 01:07 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Deb Grabetz
Support Team
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Posted: Thu Nov 13th, 2008 01:17 |
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| Nice work Odette!!!!!!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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