 |
| Author | Post |
|---|
eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
Offline
|
|
Posted: Mon Dec 8th, 2008 03:06 |
|
When the Birthday thread was started Deb and I talked about making a separate thread for MP Anniversaries, and so I looked through the pages of threads and didn't find one...so here it is!
Post your MP Anniversary Here!
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
|
eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
Offline
|
|
Posted: Mon Dec 8th, 2008 03:16 |
|
Yesterday, December 6th, marked the beginning of my third year on the MP.
What do I think after two years and how am I doing?
I think the MP is my path and I have a long way to go along the path yet.
One of the things I think I've seen is that the longer a person has been disabled and whether the person is still very sick (i.e., the person hasn't had any sort of immune system rebound and improvement from the rest that disability kinda brings), the longer it takes to get better or to turn the corner. That is, once the CWD really take over (they move very fast--the little beasts--to take over), the path out is a very rocky one.
With that said, although my energy is still extremely limited, you should have seen me during my break last spring. During that time, I felt better than I did when I was still working and should have been home disabled (two years before I finally bailed...in the end, I bailed lying across my desk with barely the energy to answer emails).
My improvements would probably appear small to someone looking for a magic bullet or compared to people who feel better immediately on the MP or who turn the corner in a year or two. However, for me, they are GInormous!
Lots to be thankful for.
Thanks to all of you (Board staff and cohorts) for the MP and for making it tolerable. Without the support of so many people, I know I wouldn't have made it this far.
Claire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
|
suecat
Member
| Joined: | Thu Feb 14th, 2008 |
| Location: | |
| Posts: | 71 |
| Status: |
Offline
|
|
Posted: Tue Dec 9th, 2008 03:23 |
|
Yea for you Claire,
Happy Anniversary!
your upbeat outlook gives me hope! as I've been sick for a very long time and am
having a truly tough time of it just beginning ph2 and seeing ahead to healing. I did
the same with hanging in until I just "fell out"
I remember even before i got so bad after each of my pregnancies that i was
teaching Kindergarten and it was all day program, when the kids would go down for a
nap I'd literally pass out the desk when I was actually supposed to be during
remediation for those who needed it as most of them never actually napped but
rested on their mats. That was the same year I got pregnant and I never went back
to teaching, couldn't worked if I would have had too the only thing that has kept me
moving from that point is my own babies needed me. Now that they're older I've
come to terms with how sick I am..well kinda..still hard
____________________
FMS/CFS 125D55 25D32 Ph1Apr08 cal/mag guaifensen gabapentin doxylamine NoIRs covered up low lux home
|
Freddie Ash
Member
|
Posted: Tue Dec 9th, 2008 13:24 |
|
HI ALL
This is Fred in WV. Claire, just wanted to say a great big HAPPY ANIVERSITY on this being your 3rd year on the Marshall Protocol. I have been on it over 3 years now and doing great. It looks like you are getting there also. Keep up the great work and you will make.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
____________________
Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
|
Alayne
Member
| Joined: | Wed Sep 21st, 2005 |
| Location: | California USA |
| Posts: | 579 |
| Status: |
Offline
|
|
Posted: Wed Dec 10th, 2008 06:16 |
|
Congrats Claire and Freddie! I've just passed my 3 year mark. Have so many improvements...will be posting them later on in Success Stories.
Suecat - so relate. I used to teach as well. I'd bring a camping mattress so I could lie down and nap on the floor (yuck?) between classes (at least I could lock the door). It was the only way I could make it through the day...until that wasn't enough and I ended up wheelchair and bed bound...
Happily, I can now make it through the day without a mattress, although I sometimes still like to sit down and rest in between. I'm not teaching any longer, and don't know if I will (career choice), but am busy with other things that require stamina, including a brisk 1-2 miles walk almost each day!
Cheers!
Alayne
____________________
CFS/FM Sick 30+yrs. NoIRs/Zinc oxide. 6/05:25D-34, 1,25D-69; 11/07:25D-8 1,25-37. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3. 4/09-10/09 weaned off abx. Benicar q4-6h. Heavy metal chelation as recent adjunctive therapy.
|
HeatherK
Member
|
Posted: Tue May 25th, 2010 17:36 |
|
CONGRATS TO JanEE on her 5th MP anniversary !
drumroll .... !
Heather
____________________
CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
|
Freddie Ash
Member
|
Posted: Tue May 25th, 2010 18:41 |
|
HI JAN
This is Fred in WV. I want to wish you a very HAPPY 5TH ANIVERSITY of being on the Marshall Protocol. May we both be coming to late stages of the protocol soon and have our health back. I am almost there, I think.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
____________________
Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
|
Knochen
Member
| Joined: | Thu Feb 23rd, 2006 |
| Location: | USA |
| Posts: | 380 |
| Status: |
Offline
|
|
Posted: Mon May 31st, 2010 15:01 |
|
Last Friday was 4 years on the MP for me. I'm still standing and a lot of the bugs aren't. Many improvements, but not done yet. I was sick for a very long time before this and have had to work throughout the MP and I'm sure that hasn't helped make it any easier.
My current attitude is one of very grim determination to see this through. I had hoped that the rest of the world might have opened their eyes to what we are all doing here, but alas, the papers still spout the "miracles" of Vitamin D. That saddens me.
"And miles to go before I sleep..."
____________________
Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
|
HeatherK
Member
|
Posted: Mon May 31st, 2010 15:39 |
|
CONGRATULATIONS KNOCHEN ON 4 YEARS ON THE MP ROAD!
drumroll..... !
Heather
____________________
CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
|
Freddie Ash
Member
|
Posted: Mon May 31st, 2010 15:59 |
|
HI KNOCHEN
This is Fred in WV. I just want to say CONGRATULATIONS ON 4 YEAR ANIVERSITY of being on the Marshall Protocol. Yes it has been hard to do the Marshall Protocol, but I look at it as not doing the Marshall Protocol is much harder. I know I am much better off for doing it. My family doctor just told me that if I had not done the Marshall Protocol I would be a dead man today. Now that is what I call hard for not doing the Marshall Protocol. Keep up the great work you do here at this site.
HeatherK - I love you new picture. I have been meaning to tell you when I first noticed it.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
____________________
Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
|
Deb Grabetz
Support Team
|
Posted: Sun Jun 27th, 2010 14:23 |
|
Hello Knochen,
Congratulations and my apologies for being one of the last to respond to your anniversary post! ...been away for a bit!
It is no small feat to be where you are today...FOUR YEARS ON THE MP! Most of all, it is so important to note what you say as "I'm still not done yet"...good advice for so many as we forget how very long we were ill...and it doesn't happen overnight. But what does happen is remarkable...and YOU are remarkable!
Deb
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
|
Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 797 |
| Status: |
Offline
|
|
Posted: Thu Jul 8th, 2010 10:53 |
|
Congrats Knochen. Still more miles to go. Have Benicar, will travel.
____________________
Search the MP Knowledge Base __ Be Kind, We Are All Fragile
•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•
|
Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 797 |
| Status: |
Offline
|
|
Posted: Thu Jul 8th, 2010 10:55 |
|
Ok, I'm finally getting on here to post...
and here it is... this July is my THREE YEAR anniversary on the MP!
It's been a long three years on the MP, but I know without any trace of a doubt that it is working to restore my body's own natural ability to heal itself. It's been probably the hardest thing I've ever done. But I would do it all over again if given the chance to change my mind.
I would say that I'm 60% of the way towards the level of recovery I am looking for. And I am very confident I will achieve this through application of the science behind the MP.
____________________
Search the MP Knowledge Base __ Be Kind, We Are All Fragile
•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•
|
HeatherK
Member
|
Posted: Thu Jul 8th, 2010 13:30 |
|
Congrats to Joyful on your 3 YEAR Anniversary!
This is an awesome feat and I feel the same about doing it all over again, there was no other choice for us... yes it IS rough , the most difficult journey I have embarked on too, but even the roughest patches are better that those years of 'no hope' and of continually declining health, wondering constantly WHAT is wrong with me?....
Wishing you more recovery in the next year, slow but SURE!
Heather
Last edited on Thu Jul 8th, 2010 13:35 by HeatherK
____________________
CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
|
Freddie Ash
Member
|
Posted: Thu Jul 8th, 2010 13:35 |
|
HI JOYFUL
This is Fred in WV. CONGRATULATIONS ON YOUR 3 YEAR ANIVERSITY for doing the Marshall Protocol. Also keep up the great work you are doing here at the site.
You say you are 60% of the way there to the level you want to be is great. It has taken me longer to reach the 60%. But I know we all will be to the place of wellness we want if we just stick to the Marshal Protocol guidlines. Yea! to Dr Marshall and his MP with all the staff.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
____________________
Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
|
Deb Grabetz
Support Team
|
Posted: Thu Jul 8th, 2010 14:42 |
|
Joyful,
Congratulations on your THREE YEAR ANNIVERSARY...and not to steal your thunder, would you mind sharing your month with me also??
It is also three years for me this month on the full protocol. I started weaning steroids in April of '07 and it took three full months before I was able to start the protocol.
Yes, I cannot agree more that this IS the most challenging thing I have ever done in my life...except for living with the disease! We certainly underestimate the daily living that we all go through. I was just talking to my sister-in-law the other day about how good it felt to go to sleep when I was at my worst...when I would open my eyes, I realized how sick I was and that dealing with one more day was going to be such a challenge.
To be where I am this morning is my definition of a miracle. I am ever so grateful to Dr. Marshall, to the moderators who *held my hand* through this lengthy journey, to many wonderful people I have been so blessed to meet here on this forum, you too have encouraged me with your own strength to keep at it. It's pretty hard to give up on this kind of journey when there are so many others running the same race...
Personally, I still have my ups and downs...I think now I have just learned to work through them, take some extra Benicar and look for the best. Two years ago my list of IP ran into the range of 25-30 different symptoms with each posting...where now I deal with just a handful of symptoms. Always have to remind myself of this, as its easy to focus on the handful *wink* instead of where I have been! Rest is still necessary at times but nothing like three years ago...I have been blessed to return to a job that I absolutely love and would have been crushed to have had to give up...again thank you Dr. M for keeping my dreams alive!!!!!!
I look forward to the next couple of years as I know they will bring continued healing and noticeable improvements...I'm not getting any younger you know...but I'm surely not getting any older now because of the MP!!!!
God Bless each of you with continued wellness as you move towards another successful anniversary...each day of hard work and diligence brings us closer to health! xoxo Deb
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
|
JanEE
Member
|
Posted: Fri Jul 9th, 2010 23:51 |
|
Joyful and Deb, Congratulations to you both on passing the three year mark on the MP. You're both such an inspiration with your ongoing optimism and good spirits, and also making great strides toward fabulous health. I'm so glad that you're both part of our MP family.
Hugs,
Jan
____________________
CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
|
Deb Grabetz
Support Team
|
Posted: Sat Jul 10th, 2010 02:37 |
|
| Thanks Jan...You're quite the inspiration yourself Hugs back to you!
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
|
Joyful
Foundation Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
| Posts: | 797 |
| Status: |
Offline
|
|
Posted: Sat Jul 10th, 2010 10:16 |
|
Good going Deb & congratulations!
I know how hard it's been, but you are coming through with flying colors!!!
____________________
Search the MP Knowledge Base __ Be Kind, We Are All Fragile
•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•´'`•.¸♥¸.•
|
Pipistrelle
Member
|
Posted: Thu Jul 15th, 2010 18:15 |
|
Congratulations to you both - and thanks for the inspiration!
Here's to continuing recovery,
All the best
Morag
____________________
Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
|
Current time is 12:33 | Page: 1 2   |
|
|
|
|
