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HeatherK Member

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Posted: Fri Feb 6th, 2009 02:01 |
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I have had a painful left shoulder and arm for 2 months now. With a Tens unit, and icing and some massage I have managed to get it settled a lot. Today I had a physio treatment where I was massaged lightly and neck stretched and she taped my left shoulder for a few hours to relieve tension off that arm, It felt great for a while, then I began to notice pain coming in my good arm, in the same place the other one had started....its is almost unbearable..(..Physio says about the left arm issue that it is a very irritated nerve) It seems that it has transferred to the other arm today. Its is spasm and I am having trouble getting this to let go. Very painful.
The left arm is not paining since the physio taped it thankfully , but still has limited range of movement. This alone amazes me too as its been a daily issue for me and worse towards the end of the 10 day cycle.
I am also experiencing nervy crawlings all over the back muscles, and have had occasional numbness in the face and fingers.
Anyone have this IP?? I think that is what it is, but amazes me it could switch sides (shoulders ) so quickly???
____________________ CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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Sunbeam Member
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 359 |
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Posted: Fri Feb 6th, 2009 05:35 |
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Hi Heatherk,
I don't know why your nerve pain changed sides after physio but I do know nerve pain is very hard to take and that lots of people experience this.
I put this all down to IP and look forward to the day the MP has helped me kill all those bugs.
I hope this soon settles down for you,
Blessings Lynn.
____________________ CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Fri Feb 6th, 2009 07:00 |
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I had excrutiating rotator cuff pain in my right shoulder for nine months that was eventually relieved by physical therapy (mostly the PT switching to icing and heating my underarm--yes, that reached the rotator inflammation best) and going on a two-month abx break (note that the range of motion in that shoulder eventually came back on its own without any effort...simply by having less and less pain and attempting over and over again to do normal things). I've been back on abx since May and my right shoulder has been threatening again for the last couple of months and I'm noting a slight restriction in movement again. (I've got my fingers crossed that this round won't be quite so bad.)
During that time--the nine months of incredible right shoulder pain--, the left shoulder repeatedly threatened to act up, with twinges of pain here and there. Why two arms or shoulders whould threaten or act up at the same time I do not know. The immune system seems to have its own agenda.
I hope your other arm does not get as bad as the first. In my case, I repeatedly injured the upper part of my right arm in life and so it is no surprise that I had this problem (and I'm only talking about impact injuries, but they all seemed to have occurred to the right shoulder).
Good luck to you, Claire
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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HeatherK Member

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Posted: Fri Feb 6th, 2009 13:51 |
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Thanks Lynn for your post of understanding....it sure helps to be able to communicate like this... Its strange though I realize that I haven't noticed much about nerve pain in other posts,,,,but obviously its there, but depends what I am dealing with as to what I notice. Another issue for me is photosensitivity in past year has really curtailed what I have been able to learn from these forums. Computer light is worst.
Claire.....wow that was miserable , I can sure appreciate that pain. Did you ever take OTC Robaxcet for muscle spasms??
Thanks Girls for sharing , and I hope others will too
Gratefully
Heather
____________________ CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Fri Feb 6th, 2009 14:41 |
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| So far in this life me and medicines do not mix (chemically sensitive), and so I am pretty much going through the MP with just the MP meds (luckily I can take an expectorant though I haven't had to use one yet). It was suggested by someone after the shoulder pain started that I ought not do the MP if I can't handle pain meds...well, I was not about to give up the chance at evetual good health over pain. No other choice but to go forward. Claire
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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HeatherK Member

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Posted: Mon Aug 9th, 2010 14:26 |
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Just a follow up to my above posts of last year. About April 2009, I became under the care of a MP Dr., who took me off Zith altogether, switched to Clindy for a while and settled with using Bactrim. He said Zith was too aggressive for me at that time.
As the Zith waned , and gradually by the summer, the shoulder pain gradually eased and the 'frozen' shoulder of last year is now fully functional again. I still have some nerve IP occasionally in my hands. (almost 3 yrs on MP)
Last edited on Mon Aug 9th, 2010 17:29 by HeatherK
____________________ CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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JanEE Member

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Posted: Mon Aug 9th, 2010 17:08 |
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This is good news, Heather. I can imagine your relief. Sometimes I wonder why we can't just take a single dose of zith every few months, just to nudge things a bit. It took several months for it to suddenly overwhelm me with horrible IP, so why give it a chance to build to those levels.
I recently had some aching in two finger joints. I've never had any joint issues there, ever. It didn't last long though. I was relieved.
Jan
____________________ CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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