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Juanita Member

| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
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Posted: Wed Jun 3rd, 2009 23:02 |
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Great topic! I'm not sure what to say as I'm not the one practising the most amount of patience. I swear I stand on Martin's nerves more often now than I've ever done before. But he had his awakening before we all started the MP and so has reached a place of maturity where he has tremendous calm with me. The timing has been fabulous as we had a rocky relationship years prior to the MP. Lots of years in therapy and doing healing work.
But I have been working on clear communication and ownership of the difference between what I "feel" is going on and what ACTUALLY is happening. Because there can be a huge difference between those two mental places.
____________________ MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Thu Jun 4th, 2009 03:52 |
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Good point Juanita. When I used to teach communication workshops one of the most important skills that I would try to impart was "check it out." So often we do think we know what is going on, and a good deal of the time, if angry or hurt feelings are going on, then it is likely that it has to do with our own stuff (unless of course one is married to a jerk). I think most of the time people don't check things out because they are scared about what they will find out. The truth may set you free in more ways then one. I'd rather take the risk that my partner will tell me something I didn't particularly want to hear, then be trapped in my own fears and hurt.
Claire
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Juanita Member

| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
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Posted: Mon Jun 8th, 2009 23:17 |
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Me too. I'd always rather hear the truth, even when I'm being told I'm a bona fide jerk. Better to deal with reality.
Especially as neuro herxes can so seriously mess with one's perception! 
____________________ MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Juanita Member

| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Thu Jun 11th, 2009 23:00 |
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Okay. Here's my partnership complaint. His mother. There's a whole story summed up in those two words...... *sigh*
The MP won't cure me. Proper prayer will.
I said.... God showed Dr Marshall about this treatment and then pulled this family over to the information. God showed the scientists how to make different types of antibiotics and benicar so they could be in existence. Prayer can create miracles, but sometimes..... sometimes.... the answer is in APPLYING the miracles so you can get well.
But it's like talking to a tree stump. An ultra-religious tree stump who won't apply reason to anything, but prefers magical thinking. It's not that I don't believe in miracles or prayer or my own way of seeing God.... I just believe that the MP IS my miracle!
Fortunately for Martin's existence, he agrees with me. If he'd opened his mouth to agree with his mother... oh, baby... it would have been ON!
____________________ MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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shegeek Member

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Posted: Fri Jun 12th, 2009 15:51 |
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Reminds me of the one about the little old man and the hurricane...
Once there was a little old man sitting around the tv with his family. They were watching the news, and the meteorologist warned of a terrible hurricane headed right for the little old man's neighborhood. The family decided to evacuate while they still had time, but as they locked down the house and packed their bags, the little old man stayed put. "Aren't you coming, Grandpa?" one of the little ones asked. "No," he said, "I trust in the Lord. He will take care of me."
So the family left, and before long the storm started to pound. The streets flowed like rivers, and the little old man went outside to watch. Soon, a bus full of evacuees came by, and the driver stopped to offer a ride to the little old man. "No," he said, "I trust in the Lord. He will take care of me."
Then the water rose until it was up to the old man's waist. He couldn't go back inside because the water had found its way in and was sweeping away the furniture. So he climbed on top of a parked car to wait out the storm. Soon, a Red Cross boat came by looking for stragglers. The crew said, "Thank God we found you! Let's get you out of here." But the old man said "No, I trust in the Lord. He will take care of me."
The water kept rising, and soon everything but the rooftops was under water. Because there was no place left to go, the old man swam up to his roof, climbed onto it and hung on to the chimney. Soon, an emergency helicopter came by and tossed him a rescue line. "Thank God we found you! Let's get you out of here," the pilot shouted. But the old man said "No, I trust in the Lord. He will take care of me."
Well, of course, the water rose up over the rooftops, and the old man drowned. He was shocked--shocked--to see the Pearly Gates and God glaring at him, clearly displeased. The old man said to God, "But I trusted in you! How could you have let me die like that?" God, so furious that he had a vein bulging on his forehead, yelled, "Learn some gratitude, buddy! I gave you plenty of warning, offered you a nice cushy ride with your family, and when you turned that down I sent a bus, a boat and even a helicopter! What more did you possibly want?"
I love to tell this one to folks who make a show of crying to God for help, but refuse to help themselves.

____________________ FMS,IBS,osteoarthritis,osteopenia, hypertension/ 1,25D/25D=45/44 (10/04), 44/13 (1/05), 36/8 (7/05)
25D<4 (6/06) 25-D=5 (4-08). Avoid light & D w/NoIRs 11/04 Benicar 40mg/q4h(since 1/27/05) Phase 3
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Fri Jun 12th, 2009 16:00 |
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I thought of a similar story...the one with the rampaging elephant.
I'm with Juanita--the MP is my miracle!
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Juanita Member

| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
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Posted: Thu Jul 16th, 2009 19:51 |
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I wish it was a miracle that worked faster though. Touching Jesus's hem is starting to look pretty good right now.
So I guess the proof is in.... Dr Trevor Marshall is not God.
*sad, sad, disappointed sigh*
     
(no disrespect intended)
____________________ MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Joyful Foundation Staff

| Joined: | Sat Jun 9th, 2007 |
| Location: | USA |
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Posted: Thu Jul 16th, 2009 22:21 |
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The way I qualify it is that an amazing miracle is when all the problems are gone instantly. *really, really want that*
However I consider the healing process to be a miracle as well... any time you can't explain something (think molecular biology) *goes to look up definition of miracle * mir·a·cle
Pronunciation: ˈmir-i-kəl
Function: noun
Etymology: Middle English, from Anglo-French, from Late Latin miraculum, from Latin, a wonder, marvel, from mirari to wonder at
Date:12th century
1: an extraordinary event manifesting divine intervention in human affairs
2: an extremely outstanding or unusual event, thing, or accomplishment
I guess the instant, unexplainable event is the primary level of miracle.
And the slower process of reversing an 'incurable' disease would fall within the bounds of the secondary definition.
If #1 is not evident, I will be thrilled to get #2!   
Last edited on Thu Jul 16th, 2009 22:22 by Joyful
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Fri Sep 4th, 2009 18:09 |
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Make life great
There are endless ways to become more efficient, yet there is no way to shortcut this fundamental fact. You cannot possibly get more from life than what you put into it.
You can be very clever and think up all sorts of ways to cheat. What you end up doing, though, is cheating yourself most of all.
If you run or hide from the challenges, life's greatest rewards will never find you. When you avoid the difficulties, you also miss out on the fulfillment.
For it is in making a difference that you make a life. It is by working through the challenges that you build real and meaningful value.
Your success is up to you. Think about that, and you'll see that you really wouldn't want it any other way.
Accept that life can be difficult at times. It is through that acceptance that you are truly able to make life great.
-- Ralph Marston
Read more: http://www.greatday.com/#ixzz0Q9pdm8Ps
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Sallie Q Support Team

| Joined: | Fri Aug 28th, 2009 |
| Location: | Australia |
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Posted: Sun Sep 6th, 2009 00:49 |
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have to say my partner is also a rock, however stays balanced by avoiding the MP website like the plague
I (carelessly?) leave the computer with files displayed which may answer some of the questions which bother him, but I have not dared as yet to ask is it respect for my privacy that he never seems to have seen any of it.
Rocks are good
but Claire and Juanita, saints and martyrs I wonder about,
Is your mother-in-law in a position to consider joining a monastery? She could then perfect her prayers and it might answer yours.
____________________ MP Sept'08 | Sjogrens; b.cancer '90; childhood postviral fatigue (CFS): 25D=7ng/ml@Jly'10
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Juanita Member

| Joined: | Thu May 3rd, 2007 |
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Posted: Thu Sep 10th, 2009 18:49 |
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A monastery would be lovely. But, sadly, no. 
____________________ MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Sallie Q Support Team

| Joined: | Fri Aug 28th, 2009 |
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Posted: Thu Apr 8th, 2010 02:25 |
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Juanita wrote:
I wish it was a miracle that worked faster though. Touching Jesus's hem is starting to look pretty good right now.
(no disrespect intended)
Hmmm
and just how long is it taking for people to get the message from Jesus, saints, and all?
half educated fundamentalists of all persuasions find it easier to dose up with G*D..........
reminds me of another D 
a d*g has more sense (and love)
(no disrespect intended)
(to either )
faithfully
Sallie
____________________ MP Sept'08 | Sjogrens; b.cancer '90; childhood postviral fatigue (CFS): 25D=7ng/ml@Jly'10
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Dody Support Team

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Posted: Tue May 18th, 2010 02:25 |
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I agree the MP is mighty hard on partners. Legally married in Massachusetts, and 16 years after a formal commmitment ceremony, I feel very fortunate that Beth and I had a lot of history behind us--good times and bad--when I got desperately sick and then found the MP. I think it must be very hard when severe chronic illness strikes early in a relationship. Even though I had to become an indoor person and very inactive, she well remembered who I was before I got so sick, and has welcomed my gradual re-emergence into my old self.
Having said that, I remember now that Beth was fighting chronic illness herself, and already officially disabled, from the beginning of our relationship. But that was a given, not something new for me to deal with.
When I got sick, the tables turned and she became the same wonderful caregiver that many of you are fortunate to describe. It was very hard on her. A spouse/caregiver/ etc's thread is a great idea. But in her case, she would probably not have taken advantage of it. She uses the web a lot for certain kinds of information, but not for personal support as I have.
Based on my successes, and aware that her chronic illnesses are good candidates for the MP, she is now on the protocol herself, and making wonderful progress. I feel tremendously affirmed by her choice to join me on this journey. I nearly fell over the day she announced she wanted to start the MP herself.
Sometimes having both of us on the MP is pretty challenging, when neuro IPs bump up against each other, or when neither of us has the physical energy to do what the household needs doing. On the other hand, there's no teacher better than going through the experience herself. She really "gets it" now in a way that she could not before, no matter how hard she tried.
Most people in my life don't understand my MP journey at all. I am very grateful to have a spouse who has been so supportive of it and has chosen to embark on her own. I hope I'm as supportive of her struggles as she has been of mine. I'm often able to offer perspective and information that is of value.
Thanks for starting this thread. Dody
____________________ Lyme Arrhythmia Vertigo Meningitis Bipolar lithium tylenol cover up outside mod low lux inside ModPh2Jul07 Ph2Apr08 Ph3Feb09 D25 Oct09 7 Mar10 4
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Lee Member

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Posted: Wed May 19th, 2010 00:30 |
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I can sure relate with you all! Hubby being diagnosed with a rare autoimmune leukemia, has been on Benicar and is now trying a little mino ... If we were both retired and could take life a little easy we could probably make sense of it all. But with him still trying to work ....us trying to move (again) it is absolutley the hardest thing I have ever done. I am sure he feel the same way he is just not as vocal. But then when he hit the mino everyday one week he really went "vocal" on me. His IP is in his memory and (ears)hearing?! It gets worse and worse. He started taking his mino everyday even though he knows better ....he forgot. Since we still live apart he was a mess until I figured out what he was doing wrong. My IP has always been mostly physical ....aren't we a good match??? We both are taking abx holidays until after the move ....thank goodness .... It will almost be like living with a stranger when we do move ...a stranger on the MP too ...oh MY!! Lee
____________________ 2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
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Posted: Wed May 19th, 2010 02:43 |
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Lions and tigers and bears... oh my! Just remember, that in the end, Dorothy returned home.
Best, Claire
(Yes, rare, non sequitur IP.)
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Dody Support Team

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Posted: Wed May 19th, 2010 03:00 |
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Lee,
Sounds mighty challenging. You have my best wishes.
Dody
____________________ Lyme Arrhythmia Vertigo Meningitis Bipolar lithium tylenol cover up outside mod low lux inside ModPh2Jul07 Ph2Apr08 Ph3Feb09 D25 Oct09 7 Mar10 4
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Lee Member

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Posted: Wed May 19th, 2010 13:24 |
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Thanks ladies ... There is no place like home! Lee
____________________ 2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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