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Juanita
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| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Sat Feb 20th, 2010 17:29 |
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Unexpected improvements for me.... and it's why I haven't been here for so long, plus am 3 months behind in my personal report posts (but totally up to date in my computer log, so I'll fix that soon).... I suddenly had too much mental acuity and energy.
I didn't know what to do with so much mental enthusiasm and clarity. I haven't had it in... well..... geeze.... at least 10 years. Maybe 12. So I started a knitting business (which I'm still working), a consult business (which I've dropped), and began learning how to write film scripts as an opportunity dropped into my lap for being optioned.
Suddenly I had more things to do than I had time or wellness in the day and it captured me. I was enraptured with the excitement of feeling so mentally well and finally being a tiny bit a part of the world again.
So naturally, as you ALL understand... I over did it. Pushed myself into a depression and exhaustion. Chased my tail until I wore a hole in the carpet. But that's okay. Who wouldn't go a bit nuts when gifted with a bit of improvement?
And now I'm ready to learn a new level of pacing myself. It's all good. *smile*
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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JanEE
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Posted: Sat Feb 20th, 2010 21:41 |
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Juanita---you're back! Hooray. I too have missed your cheery countenance, and have been hoping it was for good reason---which it seems it was. What a wonderful "sudden surprise". I know I usually can't hold back when my brief "feel good" times hit either. You may have overdone it, but what a great memory to have in your MP bank. YAY!!!
Great to hear about all your accomplishments and new opportunities. Is your knitting for Etsy as before? Or is this something new? And writing film scripts really sounds fascinating. I've loved movies, and learning about their various production methods, my entire life---and also wished that I could have been in the industry in some way.
Keep on keeping on. Hugs,
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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JanEE
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Posted: Sat Feb 20th, 2010 21:46 |
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Odette, I almost missed that fabulous picture of you and your family. What a great picture, a great family, ---and a great snowoman too!
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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Freddie Ash
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Posted: Sat Feb 20th, 2010 21:52 |
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HI JUANITA
This is Fred in WV. All this energy you are getting now from the Marshall Protocol sounds like you are having an "allergy reaction". Is not that what the doctors tell us about the meds when we have a reaction to them. Ha Ha!!
Sounds great to me, keep up the great work. Yea! Yea! to Dr Marshall and the Marshall Protocol!!!
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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tussilago
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| Joined: | Tue Mar 23rd, 2010 |
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| Posts: | 5 |
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Posted: Wed Mar 31st, 2010 03:32 |
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| three months into treament my my nails are getting stronger. I put this down to unexpexted improvement cause this is not why I do the protocol. I had read of others that got thicker nails so I was looking out for it to happen.
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Deb Grabetz
Support Team
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Posted: Wed Mar 31st, 2010 13:27 |
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Tussilago....
What an interesting post! I just realized after reading your post how strong my nails are again! Thanks for bringing this to my attention! In high school I had THE longest, most beautiful nails when others would say how theirs would chip and really had lost this sometime in my early 20's.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Wed Mar 31st, 2010 19:04 |
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My nails are stronger, but have a long, long way to go. At least they are no longer splitting down the middle or straight across down into the nail bed. Just thin and brittle and heavily ridged still. What the improvement means is no more nursing painfully damaged nails. You guys give me hope that one day, I'll have decent nails.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Cynthia Schnitz
Support Team
| Joined: | Wed Apr 8th, 2009 |
| Location: | Arizona USA |
| Posts: | 65 |
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Posted: Wed Mar 31st, 2010 23:10 |
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| Mine have been back and forth a few times. Seems the center of a few of my nails are now growing out thinner. Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10ng/ml 10/10, (preMP 125D/25D=47/43) | My progress
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Lee
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Posted: Thu Apr 1st, 2010 15:24 |
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My nails are really growing lately! I even have to trim and file them. Funny as I had to buy manicure tools just this week .... My hair is better too. It is actually growing too! It is still terribly thin but with the added length I can just double my pony tail! Looks thicker that way!!  Lee
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2003 SARC w/COPD
D ratio-2.13 Ph1-2/05 Benicar| 4/05 PH2| 06 Ph3| D25=5.4 2007-TSH-0.09 probiotics/silymarin/sunlight w/noirs
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Deb Grabetz
Support Team
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Posted: Thu Apr 1st, 2010 19:06 |
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Heh Lee...Have you ever tried this? I pull mine up on top of my head in a coated rubber band when I go to sleep. I swear it makes my hair fuller in the morning! Hahahah....but I must admit my hubby doesn't enjoy the view Happy Easter Lee!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Aunt Diana
Support Team
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Posted: Fri Apr 2nd, 2010 04:16 |
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My toenails have become so strong that they remind me of horse's hooves. It is impossible for me to cut them. I either have to go to a professional or ask my husband to do it. My fingernails are strong as well but nothing like the toenails. I used to need nailpolish to stregthen my fingernails, but I haven't worn nailpolish for two years and my nails are stronger than ever.
My hairdresser also commented on how thick my hair has become. I've always had plenty of hair but these days I need to have it thinned every few weeks.
I even suspect the color is coming back a bit. Not enough that I can stop coloring it, but enough to notice.
I also have realized that by the time my mother had reached my age she had developed a "dowager's hump". Fortunately I have nothing of the sort, in fact I suspect I'm a wee bit taller than a few years ago.
These are all little things but they are nice little things. I can remember a ten year period in which I had a constant split in my right forefinger (from a splinter that had infected that finger) Nothing I did would make it go away.
Until, of course, the MP.
Have a Happy Easter Everyone.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Fri Apr 2nd, 2010 04:51 |
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Those are all nice improvements Diana. My hair is growing faster, but so far I haven't been able to tell if the area where it thinned has thickened yet. I love these reports because they definitely show a reversal of the disease process.
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Support Team
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Posted: Fri Apr 2nd, 2010 18:26 |
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Aunt Diana,
Isn't the hair a wonderful thing? I found a picture of myself that I had given my hubby when I was a sophomore in high school. It is really cute of him to keep in his wallet and I was absolutely amazed at the texture and color that I could see in the pic. I realized how much my hair had changed over the years and have often thought it was due to coloring, bleaching etc. To be honest my hair has over the past year changed so nicely for the better. It is very noticeable. I have let it grow out for my daughters wedding so beginning to notice even more the slowing of grey growth and the much healthier state! Good Stuff!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Support Team
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Posted: Sat Apr 3rd, 2010 00:00 |
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For the last 20 years I have been dealing with vision loss in my left eye, which left me about 80% blind in this eye. May as well call this *blind*! I've reported improvement since being on the MP previously, which I would guage approximately now a 20% blindness and 80% visibility. A flip flop from where I was. I lost my sight back in 1990 when I first flared.
Interestingly over the last couple of weeks I have noticed another change with this eye. Although the vision has held at 80% visibility, a sort of grayness that I have always had with the vision has cleared and I'm seeing the same colors that I see with my right eye. I have always seen colors in the left eye but as compared to the right, it is as if there is a gray film to the left that gave a mild discoloration to what I could see. Of course the discoloration was never a bother, just another annoying symptom that I added to my seemingly never ending list! It was a bit of a surprise but a nice surprise as this tells me there is still healing going on with this eye!
I am forever checking my left eye for progress as I have hoped ever since starting the MP that I would see healing. My right eye certainly has compensated for the blindness in my left all of these years but I'm sure it is what makes my eyes tired and also made it hard to read. Whether it be neuro or eye improvement, I can sit down and read a couple of chapters of a book now with ease. Prior to the MP a couple pages would do me in and I would be drowsy, even if I had the ambition to want to read. I'm forever covering my right eye with my hand to see if I notice any changes...or closing my right eye to see what my left is up to.
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Sallie Q
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| Joined: | Fri Aug 28th, 2009 |
| Location: | Australia |
| Posts: | 76 |
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Posted: Sat Apr 3rd, 2010 00:51 |
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Hard work Does bring rewards after all
that's great, Deb
(color TV does have some advantages, particularly for the nature docos)
wonderful Juanita,
perhaps you'll be off to H****w**d on business some day and get to see some of the California people
Fred, d'ya want Juanita to call you as consultant for comedy tips?
ladies, Nails and hair I can relate to. Thought I was going bald over the years, the white hairs have stopped dropping out which makes my hair look darker although still sparse. My nails used to be corrugated crosswise before I did the anti-Candida 1 year program with Nystatin.
On MP nails are definely tougher. I have to sit in the bath to soften them up before I can trim them.
Thankyou for introducing this topic, 'Tussi..'
Sallie
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MP Sept'08 | Sjogrens; b.cancer '90; childhood postviral fatigue (CFS): 25D=7ng/ml@Jly'10
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HeatherK
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Posted: Sat Apr 3rd, 2010 15:25 |
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Hi everyone!
I also am experiencing stronger nails, especially toenails, which are thicker than I can remember for a longgg time. My hair too has come in so much thicker that I am trying new updos with it!! It is still fine texture as always but the volume I think has tripled to what I had pre MP which was really getting thin.
In Phase 1 I noticed it stopped falling out, and now 30 months on MP, I have a lot of hair, just keeps growing and the gray is not as pronounced, yet I look grayer now as I had stopped colouring after starting the MP. Pre MP , I had a totally white section coming out of the crown of my head, while the front had not grayed. This white section now just looks steel grey. So the grey is darkening.
I am tempted to start covering the grey again as I am so enjoying this bulk of hair! and with my skin tone, grey makes me sallow. I am an Autumn, fair skin, and had red highlights in brown hair originally.
What I am puzzled about is the loss of CURLY hair, it has straightened, just barely has a wave , and I used to have very curly hair , lots of frizz too in humid weather. Because of the bulk of hair I do have its Ok to deal with, but the curl I had actually helped hide how thin my hair used to be.
Have any of you experienced loss of curl??
thanks!
Heather
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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Aunt Diana
Support Team
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Posted: Mon Apr 5th, 2010 04:09 |
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Hi Heather,
I'm not really sure if I've had a straightening of my hair...but I think you might be onto something. Since I don't take care of my hair the way I used to, a shampoo every day, it's hard to tell what is causing what. But I used to be a "frizzbomb" and, now that you've pointed this out, I realize I'm not anymore.
And Deb,
I'm glad to hear of your eye improvements, since lately that's been one of my most nagging symptoms.....blurred vision in my right eye as well as a blindspot that seems to come and go. I'm optimistic that these things will resolve in time.
Let me ask: do you have any sympathy for the lonely bacteria? I sure as H... do not!
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Aunt Diana
Support Team
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Posted: Mon Apr 5th, 2010 04:10 |
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Hi Heather,
I'm not really sure if I've had a straightening of my hair...but I think you might be onto something. Since I don't take care of my hair the way I used to, a shampoo every day, it's hard to tell what is causing what. But I used to be a "frizzbomb" and, now that you've pointed this out, I realize I'm not anymore.
And Deb,
I'm glad to hear of your eye improvements, since lately that's been one of my most nagging symptoms.....blurred vision in my right eye as well as a blindspot that seems to come and go. I'm optimistic that these things will resolve in time.
Let me ask: do you have any sympathy for the lonely bacteria? I sure as H... do not!
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Cynthia Schnitz
Support Team
| Joined: | Wed Apr 8th, 2009 |
| Location: | Arizona USA |
| Posts: | 65 |
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Posted: Mon Apr 5th, 2010 21:27 |
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I actually measured, a few months into MP, the circumference of my hair bundle just below the band I have used for the last 15+ years to hold my longish hair behind my head and out of my sight because I could stand looking at the measly little wisp of hair I had. So, 7 months later I remeasured, and the bundle had swelled to 50% more cross-sectional area.
My hair, which would start to disintegrate at about shoulder length, is now well down my back, and I think the reason for that is that it is growing faster, as the tips of my hair are probably still preMP hair. I used to gather the hair around my face up into a pony tail behind my head as a way to wear my hair down, but keep hair from falling in my face. I hadn't been able to do that for 15 years because the hair around my face was too short to reach. and what would make it to the back of my head wasn't enough to fill the smallest barrette. Last nigh I finally could wear my hear that way. When this hair around my head gets long enough, it sell the the bundle even more behind my head.
My hair was very straight for most of my life, and always worn long (until it started to disintegrate at such a short length). But for many years now it has been frizzy wavy, and that is still the case. But I truly expect that to change back to smooth and straight, with a slight flip at the end, as years ago.
Most of my improvements are 'unexpected', but one recent one is really a bit surprising because I just assumed it was a characteristic of old age. I could never sleep on my back with any part of the pillow at or below the joint of the neck that does the most flexing when one nods one's head down, with chin on chest. Anything under this joint, or below, would cause aching in that part of the spine, even the edge of the pillow without any filling in it. I used to think about all the dementia patients suffering this discomfort because they could not communicate with the staff what was bothering them. Well, it's gone. I guess not everyone gets this with old age after all.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10ng/ml 10/10, (preMP 125D/25D=47/43) | My progress
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Aunt Diana
Support Team
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Posted: Mon Apr 5th, 2010 21:34 |
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For the past few days I've been experiencing a dull ache in my left leg, it would build during the day and by the time I was ready for bed would be throbbing. It was starting to worry me. Along with this I have had some edema which is unusual for me, and to top it all off I'd been having lots of arrhthmias, in the form of extrabeats. Last night I was worrying a bit about all these symptoms and came to the conclusion I would call the cardiologist today and tell him I wanted to stop the beta blocker he had recently prescribed to me. (I suspected the symptoms were related to this medication-and I haven't changed that opinion) When I got up today I was happy to feel my heart seemed to have smoothed out again and the edema is gone.
But, when I looked down at my legs to see my ankles I noticed that the bluish bruises I have always had on my shins (6x8" towards the front of shin) are clearing up. The bruise on my right leg is gone entirely and the one on my left leg is much lighter and now only about 1x2" in diameter.
Now I realize that I've been having an IP and it has been clearing out whatever causes those bruises (at least I'm hoping that's what it was). Ill know in a few days if the heart flutters come back. Meanwhile, I've decided to stop taking the beta blocker and let the MP do it's work.
I honestly can't remember a time that I did not have those unsightly bruises..now my legs are pretty evenly toned ....with just a few blemishes that I hope will also clear. "Vanity, thy name is woman".
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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