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Deb Grabetz
Support Team
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Posted: Wed May 5th, 2010 15:29 |
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Exactly Freddie! I used to herx unknowingly to antibiotics and always wondered why I couldn't take them very well, until I was educated with the MP.
My doctor always had to cut the dose down from what "normal" people were able to take and I still felt terrible. Would end up flat in bed until the abx came out of my system. I dreaded taking an antibiotic through the years. Again, I used to look at my hubby taking high doses of the stuff and he was always well... AHHHHHHHHHHHHHHH...having the knowledge of the MP=PRICELESS!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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marysue
Foundation Staff
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Posted: Sun May 30th, 2010 07:10 |
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Thanks to everyone who has posted. I've enjoyed reading your thoughts and thinking of how we are all affected by the losses of those near and dear to us.
My siblings have come from across the country to join us here on the farm for the weekend. It's the first time we have been together in over 30 years! It's been wonderful enjoying their company and they have all kindly tolerated the dark house. 
Tomorrow evening (near sunset) we are having a memorial service/tree planting service to lay dad's ashes to rest. It's been quite an emotional journey and I hope to gain somewhat of a sense of closure after this weekend is over. I'm sure I'll have more thoughts to post as I unwind from it all.
For now, it's incredibly helpful to just know I have the support of such a great community here.
Marysue
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CFS/FM '95; restrict light/D Oct08; 125D70 25D30 Feb09; Benicar26Apr09; NoIRs, low light, no sun; 25D=10 (Jun09); 25D=5 (Nov09) Marysue on Benicar
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Deb Grabetz
Support Team
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Posted: Sun May 30th, 2010 11:02 |
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Marysue,
My thoughts will be with you tonight also. What a wonderful weekend it sounds like you are experiencing, 30 years is a very long time and to be together must be the best. How fitting on this weekend, when we remember all of those who have served our country to have a memorial service for your father.
A couple weeks ago, I attended a wake for a dear friends husband, who after battling melanoma for over four years and finally getting a clean slate, died suddenly one morning from a heart attack. It was a blow to my friend who had so lovingly been by his side through the chemo treatments and was feeling elated about his progress. At the funeral service (oh how I wish this was one that I could have taped to listen to over and over)...the priest directed his attention to the family and talked about how difficult it is losing someone close like a husband and a father, a grandfather. But he went on to say how this kind of love is always with us. He encouraged the family to remember that their loved one is still around, he watches over them and is in such a better place, that even with the kind of love he had for all of them, he would not want to return. It is not the kind of love that just disappears...I had to say it was a very moving sermon to say the least.
Many blessings Marysue to you and yours. Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
Offline
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Posted: Sun May 30th, 2010 20:02 |
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Marysue,
While I would rather be original, I'll have to Ditto Deb on this one.
Hugs, Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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marysue
Foundation Staff
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Posted: Mon Jun 7th, 2010 02:51 |
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Thanks Deb and Claire,
Yes, it is so inspiring to know that the love we share is the kind that transcends everything, including death and loss. Thank you for the kind thoughts and support.
We got through the memorial service despite the sadness and it was great to reconnect with my siblings too.
Of course, it is not surprising that my focus has shifted somewhat to seeing the level of TH1 inflammation in the next generation now that both mom and dad have died. It's a continuing process of realizing how many more loved ones I'll see suffer with TH1 symptoms and eventually death from the disease pathogenesis as time goes by. We are all in our 50s now (I'm the baby of the family and just turned 50 last week)-- But only time will tell as everyone ages.
The grieving is lessening for now, and I am able to get back to focusing on my own (physical) healing.
Marysue
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CFS/FM '95; restrict light/D Oct08; 125D70 25D30 Feb09; Benicar26Apr09; NoIRs, low light, no sun; 25D=10 (Jun09); 25D=5 (Nov09) Marysue on Benicar
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Dr Trevor Marshall
Foundation Staff
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Posted: Mon Jun 7th, 2010 04:11 |
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Marysue - I love the new Avatar photo
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marysue
Foundation Staff
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Posted: Mon Jun 7th, 2010 04:50 |
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Yes--me too! I thought as yet another year passes and I've turned 50, it would be misleading to keep posting my previous photo....
...as a "younger blond."   
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CFS/FM '95; restrict light/D Oct08; 125D70 25D30 Feb09; Benicar26Apr09; NoIRs, low light, no sun; 25D=10 (Jun09); 25D=5 (Nov09) Marysue on Benicar
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