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Elisabeth
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| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
| Posts: | 127 |
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Posted: Fri Jun 20th, 2008 00:27 |
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Hi!
I was wondering what other people do when they've had a "bad" day or are just feeling "yucky" to encourage or help themselves over the "hump"??
Thanks!
Elisabeth 
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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marion villa
Member
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Posted: Fri Jun 20th, 2008 02:05 |
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I , myself , think, in order su survive the hump, that this is only a hump, and in a few months I will be healthy again, see? before there were no humps only the bottom of the precipice....
now, it is terrible, I now, but is only MEANWHILE
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Lupus, RA, erythema nosodum, skin ulcers, MP 11/07, voltaren, paracetamol advil, almagato,Tylex w/codeine, NoIRs, limited outings covered up,Ph 2 started 20 april 2008, 25D<4ng
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Elisabeth
Health Professional
| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
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Posted: Fri Jun 20th, 2008 05:32 |
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Thanks Marion! I can agree that one's perspective (in anything of life) is VERY IMPORTANT!!
Somethings that help me when I reach a "hump" are:
1) a bubble bath in a quiet bathroom (I have 4 kids!) 
2) Warm, salty popcorn and a good movie!!
- - I am just interested to hear what other new/inventive ideas fellow-MP'ers have found success/help with. There might be something awesome out there that I haven't tried yet!!!
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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natalie17
Member
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Posted: Fri Jun 20th, 2008 05:36 |
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Remind myself that the bad day - whether it be physical or mental - is a sign that the good days are closer  .
Also if I have the physical energy, spend all day putting make up and nice clothes on (very slowly in my case) for dinner.. for no reason. It also helps having a few friends on the MP you can call.
I can't have baths, but I make sure I use a really lovely smelling shower gel every day & have a huge selection of great smelling body lotions & lip balms. There's a particularly good one by palmer's that is dark chocoalte & peppermint scented - I could eat it! Gets me over craving chocolate so much.
Or just go to the study site & read the success stories! Always picks me up
Nat x
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CFS/ME from June05| Ph1-July07| Ph2-Feb08 | Natalie's Story | ABCofMP
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Elisabeth
Health Professional
| Joined: | Tue Feb 12th, 2008 |
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Posted: Sun Jun 22nd, 2008 00:12 |
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Natalie,
Wonderfully scented body products ARE a great pick-me-up. That's one thing I haven't really pursued much b/c I really don't shop at all right now - and don't trust what my husband might bring home if I ask him to pick out something for me. I am REALLY finicky about scents when I'm not feeling well; they can almost make me feel worse if I don't like them, ya know?
I do love bubble baths and one of my daughters picked up some great smelling stuff the other day for no reason. Needless to say, it really delighted me and I've been taking a TON of baths lately. For some reason baths really "detox." me after a challenging day. We have an extremely dim light in our bathroom, so I can even take a bath w/ the light on and no NoIR's (my extra body part right now!).
Sounds like your Mom takes great care of you. My husband helps me SO MUCH and is very kind and considerate. When you aren't feeling well it really helps to have someone like that around....
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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natalie17
Member
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Posted: Mon Jun 23rd, 2008 02:30 |
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Hey Elisabeth,
Online shopping!! I don't knwo where I'd be without it.. haha.
My whole fam takes great care of me . Glad your husband & kids are the same!
RE; Baths, hope you have seen this...
Directions for a hot bath
It is okay to take a hot bath in order to try to increase tissue perfusion of the antibiotic/s and bacterial killing. Hot tub soaks work by dilating blood vessels and allowing for better perfusion of the antibiotic into tissues. This is particularly helpful if your inflammation is in tissues poorly perfused by blood like nerve, joint and skin. You should experience an increase in immunopathology because of this but your mileage will vary at all antibiotics doses.
If you decide to do this the best time is probably within the first 12 hours of antibiotic dosing when serum concentration is highest. Be sure that you do not raise your body temperature by more than a couple degrees and not over 100 degrees. Be careful also if you tend to get lightheaded or dizzy. You will need to take your temperature to be safe. Raising your body temperature too high could raise your blood pressure and could make you confused, nauseous, drowsy or dizzy. Hot tub temperatures are not to go above 104 degrees.
As seen in Why isn't the MP working? what am I doing wrong?
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CFS/ME from June05| Ph1-July07| Ph2-Feb08 | Natalie's Story | ABCofMP
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Elisabeth
Health Professional
| Joined: | Tue Feb 12th, 2008 |
| Location: | Missouri USA |
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Posted: Mon Jun 23rd, 2008 05:15 |
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Thanks for thinking of that Natalie.
I've been aware of such and so only take WARM baths - which still feel great since it is summertime here. I think the aromatherapy and quiet affect/soothe me as much as anything.
I do some online shopping from time to time, but just don't have the interest in shopping in general that I used to. I never realized how visually dominant I was until I started wearing sunglasses in dim light - ha! I may order some bath products though b/c I have a pretty good idea what scents I do/don't like - GREAT IDEA!!
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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natalie17
Member
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Posted: Mon Jun 23rd, 2008 05:28 |
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I agree with the aromatherapy... it's super relaxing.
The body shop! I'm sure the US has an online store from the body shop. It's my favourite .
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CFS/ME from June05| Ph1-July07| Ph2-Feb08 | Natalie's Story | ABCofMP
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Deb Grabetz
Support Team
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Posted: Tue Jun 24th, 2008 03:14 |
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I agree with the warm bath! Almost immediate relief when my body starts the all over flu-like achy feeling thing! I also find much relief with my cranial-sacral work that my massage therapist uses. Every week I think I am going to cut back to twice a month, until I go in and leave so relaxed!
The really important thing I use though if I'm getting discouraged or not feeling well, is to go back into my weaning Prednisone and Phase I posts...wow, that's like shock treatment, seeing how far I've come!
Last edited on Tue Jun 24th, 2008 03:16 by Deb Grabetz
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Elisabeth
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Posted: Wed Jun 25th, 2008 00:47 |
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Wow, I hadn't thought of that Deb. Kind of like "journaling", only online! I'm not that far into the MP yet (just 3 mos), but can imagine how eye-opening that will be as I continue progressing - yeah!!
I thought of a fun "comfort snack" I like. I think it's funny b/c my husband is ALWAYS eating/snacking and the 1st time he offered this to me (he gets offended if I don't try his "concoctions") I thought, "YUCK!". So, I took a bite and LOVED IT!! Got your curiosity up????
It's cream cheese on animal crackers!!  I know, I know! I really like it 'cause it's got protein and carb's though, besides the great taste....
Just thought I'd "share" that...!
Elisabeth
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CFIDS FM hypothyroidism depression TMJ sinusitis bronchitis Ph1 Mar08 (1/08) 25D10 (3/08)25D24 (9/08)25D12 (1/08)TSH5.8 (9/08)TSH0.3 Ph2 June08 Zoloft Synthyroid MgOx Colace FiberChoice Lactaid NoIRs homebound in lo lux
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eClaire
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Posted: Sat Jun 28th, 2008 01:51 |
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| Well I add a book that calms me to the tub bath. Usually, a well worn book on Buddhist philosophy. A really good book, however, that I read every spring is Phillip Simmons "Learning to Fall." It is a real gem, always makes me appreciate life no matter how I am feeling. I've purchased many copies of this book and given it away. (Simmons, an English professor and writer had ALS, and his book has won awards and be heralded as a must read spiritual book.) Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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HeatherK
Member
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Posted: Sun Feb 22nd, 2009 17:49 |
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I take baths 2-3 times a week, careful to keep it to 100-101 degrees. Occasionally I take epsom baths but cannot seem to tolerate them as well as I did before the MP. And because my skin seems drier now I find Epsom baths can make that worse. I do still do dry body brushing before any bath , helps to stimulate the skin and to soak away aches, keeping my baths to abt 10 mins.
Last week , I was very achy but did not feel my body could handle a ' drying' epsom bath , sp decided to try an epsom foot bath to see if that would help the achiness. I use a plastic dishpan with 100-102 degree warm tap water with 1/4 cup epsom salt in half full dishpan and keep a boiled kettle handy to top up and keep the water comfortably warm. 10 minutes is abt right,( 15 was too long., felt weak) And drink a large glass of water while doing this. It did work...achiness dissapated .
Anyone else do epsom or foot baths????
Last edited on Sun Feb 22nd, 2009 17:54 by HeatherK
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CFS for 5 yrs+ /started MP Sept20/07;( 25-D=24ng/ml, 1,25=47.5pg/ml.).. Dec/07(25-D= 14.4 ) Started Phase Two Mar 4/08; Dec 09(25D= 6); In blackout home/ wearing NoIRs/ Presumed celiac, wheat,dairy free.
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JanEE
Member
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Posted: Sun Feb 22nd, 2009 19:43 |
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I love Epsom salt baths. In fact, I may go take one now. I've been a little leary about taking one lately because I've had such strong, and constant, hip, leg and back IP that I sometimes can hardly walk. I can just see me calling someone and saying, "Help me, I'm in my tub and can't get out". I just might be able to handle one today though. I'm sorely (literally) tempted. While I know all this "over the top" water use (I guess that's pretty literal too) is not the thing to do, I do tend to stay in the shower for a long time, with that wonderful hot water beating down on me. It's heaven. When I first began the protocol I thought it was the best part of every day.
I also like foot baths. I tend to do those mostly when the weather is so cold that my feet freeze. It's great to do just before hopping into bed. I'm afraid I use hotter water than just warm though, because my feet are red when I get out.
A naturopath I once went to had a foot treatment that she swore cured a cold. It was called the "wet sock treatment". Just before bedtime you soak your feet in hot water for 10 minutes and then put on a pair of cold, wet socks, plus a dry pair over them---and hop into bed. I'll tell you it sure made me grimace and grit my teeth. I don't think it ever did much for the cold.
Jan
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CFS, FM hypothyroid 125D69 Ph1 5/05 Armoir thyroid promethazine mag B12 for low blood levels NoIRs limited outings covered Ph2 9/06 Ph3 8/07 25D11
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eClaire
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Posted: Sun Feb 22nd, 2009 19:58 |
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I've mentioned this before on some other thread, but the comment about getting in the tub to deal with all over body pain made me want to put it out there again.
When I have a "fibro-like" pain attack, I can put my feel on a frozen gel pack and get relief, particularly if my feet are also acting up. Sometimes I feel too cold to do this and the idea of it seems like torture, but if I can cover up and make myself do it, I usually experience relief. A friend postulated that the ice acts as a brain distractor, serving no other purpose. Fine and dandy as long as it works.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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lionel forbes
Member
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Posted: Mon Feb 23rd, 2009 04:15 |
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| i am a garden person,and i am very much invigorated by the presence of plants and my vege garden,which kind of grows up as well as out,so that i am virtually walking through a forest of vege plants that completelysurround me. so as a matter of course, i am in the garden very early and late to avoid too much light,heavily covered up, and the experience i guess has kept me going pre and during mp time.also, the music of vagelis ,which is like chocolate and sweets to my ears and soul,really does heaps for me. ragards
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Sarcoidosis/lungs via biopsy 125D28 25D24 Ph1Jan05 Ph2Mar05 Ph3Aug/06 no other meds 25D7.8 (Nov07) NoIRs cover up
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Barney
Support Team
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Posted: Mon Feb 23rd, 2009 04:44 |
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I have a 'rice sox' which is nothing more than a man's tube sock filled with white rice and heated in the microwave for no more than 2 minutes (more time and it burns/ruins the rice). My first herx was from my eye tooth (root canal) thru my jaw to my right ear...so severe I did not think I would ever swallow another mino...but I did. I used pain pills and tylenol and that rice sox heated over and over again until I finally got past that pain. I hadn't yet learned to use extra Benicar. Seems we are all so afraid of it when we first start MP.
My family, even my little 4 and 3 yr old great grandbabies, grandchildren and in law children have helped me thru by lots of phone calls to Grandma with the big dog to see if I was still sick and still had to stay out of the sunlight. One year, I think it was my second year on MP, the little ones and other family members all went to the State Fair arriving before dark and even those little ones stayed in the big buildings keeping me out of the sun. They never protested not getting to go out and get on the rides until after dark, such sweet babies.
They also came to my house to keep me company for a weekend, every so often.
The phone and my computer were my lifeline to keep me sane.
When I really felt alone, I would get the fanciest glass I owned and put Koolaid or tea or juice in it and pretend I was having a great party (even by myself).
Then, of course, the new husband very caring, very MP believing came along and I am 4yrs into MP and a great deal more secure in doing the MP, but all these things above still mean a lot.
My hot chocolate helps: 2/3 c hot water, 1/3 c half/half, 1 sweet/low, 1 stevia and 1 tsp cocoa powder, then heated a little more. OOOOOOOOH so good.
I too love to soak my feet just like Heather said.
On Phase 1, I grew a beautiful garden at night with the help of a porch light to see.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Jeannine
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| Location: | Mississippi USA |
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Posted: Thu Feb 26th, 2009 11:20 |
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Two great things I find for pain in acute areas that works TREMENDOUSLY well for me are the massage mouse by hi dow ( you can google it)
and http://www.conquorha.com comfort rub...it is somewhat smelly but works really really well...my finace loves it too...I couldnt find a product like it at walgreen or walmart...works for muscle or deep joint pain on me and ligament pain.
Take care, Jeannine
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CFS FM Lyme Morgellon's 125D49 Ph1Aug06 25D <4 april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Feb 26th, 2009 11:57 |
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Jeannine, that web site seems to just be one of those generic advertising sites. Did you give the correct URL?
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Deb Grabetz
Support Team
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Posted: Thu Feb 26th, 2009 12:09 |
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I've really enjoyed this comfort thread--I will sometimes re-read these posts. I've noticed as I've become older and not caring for my own children now 24/7 (also, no grandchildren, YET!) I have turned into such a comfort person, treating myself!
One of the first things I did when I was stuck in bed most of the time, was to buy this soft, cream colored blanket. When I was feeling yucky, which was just about every minute of every day, I would curl up with my "blankey" and physically cling to it. As a child, I cannot remember carrying a blanket but all of a sudden the concept hit home for me. I felt immediately comforted with this blanket, it was soft and warm and it is still on the corner of my bed. Although it served its purpose well and I still use to keep warm on these cold winter nights...it still holds that pleasant memory of soothing my suffering body time I curled up with it!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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magsmom
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Posted: Sun Mar 1st, 2009 01:12 |
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http://www.antiquesbyuzi.com/hidow-massage-mouse.html
See above for a more direct link for the massage mouse. I wonder if it works similar to what a tens unit does as it appears to be vey similar. Magsmom
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FM/Fatigue/Lyme/TMJ/Trigeminal Neur/Migraine/Degen Disc Dis/Sciatica/OsteoArth/Myalgias 125D52.2 Ph1Aug08 Benicar NoIRs low light home exp rt work aprx 30min 25D32.4
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