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Elijuh Member
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Posted: Sun Jan 25th, 2009 15:32 |
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Here are 2 good ones from the late, great.....
Shel Silverstein.
I repeat these often to the progeny.
Listen to the mustn'ts, child,
Listen to the don'ts,
Listen to the shouldn'ts,
The impossibles, the won'ts,
Listen to the never haves,
Then listen close to me,
Anything can happen, child,
Anything can be.
Alice ate from a plate that said, "Eat me."
And up she grew so tall,
Alice drank from a cup that said, "Drink me."
And down she shrank so small,
While everyone else never tried nuthin' at all.
'Course he also wrote a poem called "Dreadful" about someone eating the baby.
Blessings!
elizabeth
____________________ Elijuh
Diffuse Scleroderma,SLE,Lyme,FM,RA,Severe Raynaud's,hx lung resection,125D37 Protonix Restasis & Advair NoIRs limited outings covered up low lux home 25D15 Jul06
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Deb Grabetz Support Team
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Posted: Wed Feb 4th, 2009 12:15 |
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"Adopt the pace of nature,
her secret is patience"
Ralph Waldo Emerson
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Wed Feb 4th, 2009 12:27 |
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| Good timing. I was just having a discussion with another MPer about patience and how the MP is a great teacher of that virtue. A few years back someone shared with me the concept of radical acceptance and that more than anything has made patience easier for me. Claire
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz Support Team
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Posted: Wed Feb 4th, 2009 19:32 |
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Well Claire, I guess it is surely the best advice there is for anyone wanting to be successful on the MP as you and I have surely learned first hand! What is that other saying about patience being a virtue...it has certainly been one that I fought in the beginning! Nice to be in that comfortable place of acceptance!
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz Support Team
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Posted: Thu Mar 5th, 2009 10:37 |
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Blessed are those who can give,
without remembering
And take without forgetting.
Footnote: Personally, I know that I will never forget what the MP and Dr. Marshall's research has done for me. I have taken much from many of you on site, who have supported with kind words, with helpful suggestions when getting through very tough IP, with unselfish advice, when you yourself were not feeling well. When you yourself , have been struggling to maintain a sense of stability, you have been there for me and others...you cheered me on when I was able to return to work...
No, it would be impossible to forget all that I have taken!
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Claudia Member

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Posted: Wed Mar 11th, 2009 04:39 |
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Been in Florida again and guess what? Visited Ponce de Leon State Park - you know, the fountain of youth and all that? There is a beautiful spring there where the water is supposed to have magical properties... Well, I reckon it must have benicar in it *wink*
http://viewmorepics.myspace.com/index.cfm?fuseaction=viewImage&friendID=47715078&albumID=2759476&imageID=55277590
Claudia
____________________ MP Phase1 23Mar_06; Phase2 July 10_06; Phase3 Nov 4_06. Dx Thyroiditis (Thyroxine); arthritis; glaucoma; CFS (1988-92);Kidney & bladder probs. Feb06 1,25D=43.3; Aug07 1,25D=27.5; Feb06 25D=44; Aug07 25D=28; Nov07 25D=36; Mar08 25D=16.4
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Deb Grabetz Support Team
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Posted: Wed Mar 11th, 2009 13:31 |
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Claudia,
What a treat to get to view your pics! I've never been to this state park...and enjoyed the virtual tour! You look happy...you look energetic! Deb
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Wed Mar 11th, 2009 18:34 |
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I just realized that if I lived another 30 years and made seeing every state park a goal, I'd have to visit a little under 5 parks a year , which means I'd have to visit, of course, every state. I think I will stick to my goal of seeing the Grand Canyon and the painted desert and Greece. 
Way to go Claudia's Mom!
Claire
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Claudia Member

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Posted: Thu Mar 12th, 2009 02:44 |
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OH, it was only every Florida State Park... not every one in the USA... but it took almost 5 years! 146 parks in her "passport".
It was a lot of fun helping her get the last few parks this year. Amazing what a boost happiness gives us; I believe it is very important to remember how much that matters to our health. Stress and depression are going to make healing that much harder. Joy and relaxation make our bodies heal better. Medicine is important too, but body, mind and spirit together are what put the "whole" in wholistic!
claudia
____________________ MP Phase1 23Mar_06; Phase2 July 10_06; Phase3 Nov 4_06. Dx Thyroiditis (Thyroxine); arthritis; glaucoma; CFS (1988-92);Kidney & bladder probs. Feb06 1,25D=43.3; Aug07 1,25D=27.5; Feb06 25D=44; Aug07 25D=28; Nov07 25D=36; Mar08 25D=16.4
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Sunbeam Member
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 359 |
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Posted: Thu Mar 12th, 2009 02:47 |
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Thanks for the treat Claudia. They are fantastic photos and everyone looks so happy.
I'm so glad you had a great time,
Take care, Lynn.
____________________ CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Thu Mar 12th, 2009 04:05 |
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eGads!!! I wonder how many state parks there are in the US!
P.S. I was so excited I hit the send button twice!
Last edited on Thu Mar 12th, 2009 04:05 by eClaire
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Aunt Diana Support Team

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Posted: Thu Mar 12th, 2009 05:45 |
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GREAT Photos!! Florida has it's own kind of beauty. Where did you get that crab? YUM!!
Thanks for the fun.
____________________ Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, , benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux
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Deb Grabetz Support Team
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Posted: Thu Mar 12th, 2009 11:12 |
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Claudia wrote:
It was a lot of fun helping her get the last few parks this year. Amazing what a boost happiness gives us; I believe it is very important to remember how much that matters to our health. Stress and depression are going to make healing that much harder. Joy and relaxation make our bodies heal better. Medicine is important too, but body, mind and spirit together are what put the "whole" in wholistic!
claudia
Claudia,
I found your note very interesting because when I was "struggling" with the decision to try to go back to work, my doc said it may be a boost for me physically and actually said he would be in favor for that reason alone. Obviously, the meds and protocol are what gave me the foundation but we are a total package, as you say, body, mind and spirit that work together!
Nice!
Deb
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Pipistrelle Member
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Posted: Fri Mar 13th, 2009 00:58 |
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Inch by inch,
Day by day,
Step by step,
All the way,
Piece by piece,
Bit by bit,
And little by little
You’re there.
If you can’t climb a mountain then climb a hill,
That’s much better than standing still,
There’s a way if you’ve got the will,
And little by little you’re there.
If you can’t swim an ocean then ford a stream,
Just remodel your basic scheme,
Don’t give up ’till you’ve reached your dream,
And little by little you’re there.
Good things that are here to stay,
Don’t get done in just one day,
Once you’ve started you’re on your way,
And little by little you’re there.
If you can’t save a million don’t draw a blank,
Just keep filling your piggy bank,
You’ll have only yourself to thank,
When little by little you’re there.
Every rose was once a bud,
One small raindrop starts a flood,
An acorn planted in the mud,
Will grow … you … know …
If you can’t walk a mile take one long stride,
Move along with a sense of pride,
Step by step ’til you’re satisfied,
And little by little you’re there.
author unknown
____________________ Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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Deb Grabetz Support Team
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Posted: Fri Mar 13th, 2009 11:41 |
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Oh Morag, absolutely beautiful...and so perfect for those of us recovering! I didn't even want to post a reply as to move your lovely poem up a notch but just had to tell you how awesome it is!
I shall print and put on my refrigerator, to keep reminding me of these little goals we so often forget that we are all accomplishing..day by day!
Hugs, Deb
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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caroldeleah Member
| Joined: | Tue Jan 15th, 2008 |
| Location: | USA |
| Posts: | 57 |
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Posted: Fri Mar 20th, 2009 09:08 |
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**Life isn't tied with a bow--but it's still a gift!**
Wishing everyone an IP-tolerable day!!
Mom
____________________ Uveitis|HashimotosHypothyroidism|Thyroid Nodule|Arthralgias|RefractiveMyopia|1,25D34| Ph1Aug08|Ph2Nov08|Ph3Jun09|25D 6(02/09)|25D 9(12/08)|Combigan/Cytomel/RefreshPlusSgl/NoIRs
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Deb Grabetz Support Team
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Posted: Sat Mar 21st, 2009 11:29 |
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“Before you speak, listen. Before you write, think.
Before you spend, earn. Before you criticize, wait.
Before you pray, forgive. Before you quit, try.
Before you retire, save. Before you die, give.” -
William A. Ward
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Pipistrelle Member
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Posted: Sun Mar 22nd, 2009 13:45 |
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“A dreamer is one who can only find his way by moonlight, and his punishment is that he sees the dawn before the rest of the world.” - Oscar Wilde
Thank you Dr Marshall et al for leading the way!
____________________ Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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caroldeleah Member
| Joined: | Tue Jan 15th, 2008 |
| Location: | USA |
| Posts: | 57 |
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Posted: Tue Mar 24th, 2009 01:58 |
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“Sleep not, dream not; this bright day
Will not, cannot last for aye;
Bliss like thine is bought by years
Dark with torment and with tears.”
Emily Brontë
(1818-1848)
Mom
____________________ Uveitis|HashimotosHypothyroidism|Thyroid Nodule|Arthralgias|RefractiveMyopia|1,25D34| Ph1Aug08|Ph2Nov08|Ph3Jun09|25D 6(02/09)|25D 9(12/08)|Combigan/Cytomel/RefreshPlusSgl/NoIRs
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Deb Grabetz Support Team
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Posted: Fri Mar 27th, 2009 14:56 |
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"SLOW AND STEADY,
WINS THIS RACE"
The MP
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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