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Carricol
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Posted: Fri Jul 17th, 2009 03:32 |
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| It has been 100 degrees or above here in Texas almost every days since mid June. The two or three cool days during that period were 98 or 99.
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Sarcoidosis 125D38 Ph1 Nov07, fluoxitine Lithium Synthroid 5-HTP tyrosine, NOIRs lite exp r/t commute cover up, Ph2 Jan08 25D9 Feb08
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Sun Aug 16th, 2009 22:08 |
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The tops of some of our tall trees have turned yellow from nightly cold temps. Yikes! It's too soon for Fall!!
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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k
Member
| Joined: | Fri Aug 10th, 2007 |
| Location: | Australia |
| Posts: | 125 |
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Posted: Mon Aug 17th, 2009 11:30 |
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I have to say I'm very envious. Here in Australia the days are getting longer and spring is coming.... after which means summer.... which means worse IPs for me and more problems avoiding sun, heat, humidity. With huge luck, maybe this might be my last summer of having to so strictly avoid sun (will be my third such summer),
regards, k
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ME/CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil hydralazine Ph1Oct07 25D50Jul07 25D23Oct07 25D13Jan08 NoIRs cover-up low lux home lite exp r/t to work Ph2Feb08
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expate
Member
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Posted: Mon Aug 17th, 2009 23:22 |
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Trying to orchestrate posting a photo of me in a new hat, purchased in that most genteel of southern cities, New Orleans. A place where a lady can find a hat that has charm. Ah yes, I am now a veritable Shady Lady. 
Two obstacles:
1) The photo has yet to be taken; 
2) I am not entirely certain the breadth of its rim could fit in the restrained confines of a computer screen. 
No, I'm not kidding. C'mon, I bought this hat in the Deep South.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
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Posted: Thu Sep 10th, 2009 18:18 |
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Good luck, K. I was doing really well for light this summer (NoIRs, hat, total cover up but I didn't need the Kcream this year). My third summer also. And then we went to the eye doctor. Holy Moly. One little "just look into the small light while I check the backs of your eyes".... and KAPOW!
Now when I get the smallest extra light, the spiders start crawling under my skin. Ugh. And the anxiety for two weeks after the doc visit was something else too. Woof.
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MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
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Cynthia Schnitz
Support Team
| Joined: | Wed Apr 8th, 2009 |
| Location: | Arizona USA |
| Posts: | 65 |
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Posted: Wed Dec 16th, 2009 03:49 |
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Well, for those of you that have a Walmart within reach, I see that Walmart has the womens long over the wrist length black leather gloves in stock again this. Only available in winter, so you have to stock up. I found I used 2.5 pairs up over the year from availability to the following year's availability.
Also at Walmart, I see that they are again having really nice long sleeved turtle neck tee shirts again (Faded Glory), coming in black for sure, and if you keep checking they can be had in navy blue and a few other colors that are less MP Ok. Material is soft and seems to launder well, and they are unusually inexpensive. I wear them all year. There are some similar ones in the women's section (Just My Size), but I haven't worn or washed these yet, and they are twice the price.
I also noticed some velour pants which I like as they are 100% light tight and pretty comfortable when it is warm. I am not finding them in my size so easily as I have gained enough weight on the MP to limit my self to having to be there when the stock comes in as the large sizes go first.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10ng/ml 10/10, (preMP 125D/25D=47/43) | My progress
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Wed Dec 16th, 2009 04:50 |
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Ah... I just picked up a black lambs leather jacket for the summer at K-Mart. $78.00 (Originally $130) Best price I've seen since I started looking around. Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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neldawhite
registered
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Posted: Fri Jul 2nd, 2010 00:06 |
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Here are my experiences and success in trying to cool down while exposed to hot weather and sun. I still hot flash and do not properly perspire so I overheat very easily and become very sick if I do not cool my body down quickly once the overheating process starts. Yesterday in Sacramento it was about 108 so even indoors I used my cooling vest and the wet wrist bands to keep my wrists cool especially while on my lap top.
First off I have found that if I must be in the hot sun I must protect most of my body from the sun rays that pierces clothing and causes heat directly from contact. I prefer to wear a large lined black hooded loose fitting trench coat with hood that completely blocks the sun rays from getting near my skin. Thin black clothing just attracts the sun and makes the skin feel hot so the coat or cover must be thick enough to block all rays while fitting loose allowing skin to breath. While the coat seems hot it actually keeps you much cooler as it blocks out all sun. And an umbrella is a must for face and head.
 http://www.llbean.com/llb/shop/57158?from=SR&feat=sr I get a larger size so it fits loose
I wear a thin t-shirt underneath the coat with a Polar wet cooling vest, very wet so that it wets the t-shirt and wets the upper areas of my pant waist line a bit as well. I then wear a thin swimming jacket from Coolibar to protect the Trench Coat a bit from the wet vest. Also if I need to remove the trench coat then I have a long sleeved thin 50spf jacket on, for shade or indoor settings.
If it’s really hot I will wear my black swim tights and put them on slightly damp, with either a long dark skirt or thin pants over them. This keeps the sun off my skin while keeping me very cool. It seems binding but it is quiet cooling on the body.
I also wear the wet wrist bands on wrist and ankles. I keep a portable handheld fan nearby. I also keep a personal mister (see below) to spray and fan my face should I continue to overheat. Fans work so much better on damp skin. I also wear a wet neck bandana which I turn over continually as it gets warm. I keep a large baggie or mini cooler with extra water for dipping garments in as they dry.
If I don’t wear the trench coat in the car I at least drape it over my lap to keep the sun rays off. Makes a world of difference in personal comfort.
When we travel to our time share in Cabo each year I love this outfit as I can easily slip in and out of the cool (hot) tub/ pool fully dressed in my fully swimmable outfit. Then wear it down to walk the beach or eat in the restaurant there.
I’ve never used the skull wet caps or wet baseball caps but I’ve included the links here also. My hair is so thick it would not penetrate but for the men it could be refreshing. Also these links show women’s styles but they have everything for men as well http://www.coolibar.com/03209.html Swim jacket Sunteck Fabric
 http://www.coolibar.com/03210.html swim tights.
 http://www.painreliever.com/polarproducts_EvaVest.html
I personally like the styles that do not require ice as it melts fast and it’s hard to replace the ice when you’re out, and ice is often uncomfortably cold. However these styles only require quickly soaking in water. I can use a public rest room or pack a small carry thermal case with cold/icy water and rewet there if necessary. I bought two sets of wristlets and wear the 2nd on my ankles, or place one wet under bra or under panty line. Sorry to be so graphic but hey whatever cools us down.
This vest fits perfectly under a nice v lined sleeveless top so I wear it under evening wear as well.
 http://www.painreliever.com/polarproducts_EvaWrist.html
Chill out and relax with the Evaporative Cooling Vest by Polar Products. Don't let the summer heat get you down! This stylish personal cooling vest breaks through the heat like a fresh breeze with its polymer fabric, enabling you to enjoy being outside in the sweltering sun. This cooling vest is designed to help individuals with multiple sclerosis or other neurological or physical disabilities which cause intolerance to heat.
- How to use
- Submerse in water for 1-3 minutes
- Wring out excess water
- Provides hours of cooling relief
 http://www.painreliever.com/polarproducts_EvaBallCap.htm l [/url]
[url=http://www.painreliever.com/pics/9/polar-products-inc/neck-cold-wrap---kool-max-cooling-systems.EvaNeckBand.1.800.jpg] http://www.painreliever.com/neck-and-upper-spine-cold-therapy-from-polar-products-evaneckband.html
 http://www.amazon.com/Mister-Personal-misting-MISTNG-colors/dp/B0009KBKQ4/ref=pd_sim_k_2
I have about 4 of these misters and everyone steals them from me. I don’t sweat so it really helps to apply a thin layer of mist to my face or chest and use a small personal fan to cool down for those moments when you are really overheating and just need some relief. It is small and works on a pump action. I found mine at Wal-Mart.
Hope this gives you some ideas.
Nelda
Last edited on Fri Jul 2nd, 2010 00:17 by neldawhite
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Fibromyalgia |swollen lacrymal glnd |chr. HFlash 3yrs |Sinus Pressure | Ph2MP (Independ)Oct 19 08 | 100mg Mino 1-14-09 | Tylenol | | NoIRS|covered up| low lux home | rare outings
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