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expate
Member
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Posted: Fri Aug 15th, 2008 20:13 |
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Cut the fat off beef? I knew for pork, but beef too? I may as well ask now. Is chicken skin a no-no?
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Knochen
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| Joined: | Thu Feb 23rd, 2006 |
| Location: | USA |
| Posts: | 380 |
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Posted: Fri Aug 15th, 2008 21:36 |
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I've never worried about cutting the fat off the beef and I'll eat the skin on chicken (although I don't eat a lot of chicken). My D levels were just done and came in well under 12. Don't worry too much about it.
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Reiter's Syndrome 25+ yrs, fatigue, joints, muscles, migraine, brainfog| 25D 6 ng/ml |Benicar May06|Ph1 June06|Ph 2 Sept06|Ph 3 Jan 07|NoIRs K-Cream Zinc Oxide cream - Always covered!
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expate
Member
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Posted: Fri Aug 15th, 2008 23:25 |
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Thank you. I've been limiting the pork on your advice, but I haven't entirely cut it out.
I had blood drawn to test D leveels on Wednesday. I can't wait to get the results.
 dette
P.S. Sorry about the whole milk comment. It was true of my health food store here.
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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neldawhite
registered
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Posted: Sun Sep 21st, 2008 05:27 |
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Responding to the sweating questions. I am a pre-MPer so all I am adding is I too have not been able to sweat save some clammy feelings with hot flashing and lot's of exercise. When on long hikes with friends they are wiping sweat from their necks, foreheads, it runs down their faces and their shirts are soaked. Then there is me, red faced, ready to pass out and holding wet cloths to my face. I feel weak and so overheated I have to stop and cool down as I feel it would be a medical emergency if I did not. I usually travel with a spray bottle of water, a neck cooling scarf, a portable fan and a wet rag. But these days I know better and I just don't push myself and stay close to home as the older I get the less I want to play the game. I too look forward to my body responding properly once into the Mp. I also have problems with extremly itchy legs when walking in cool weather. My thighs itch so bad I have to stop walking. They actually start to burn and look sunburned and blotchy. Then when warming up they still itch and burn and I have to put cold rags on them. So I don't walk in cool weather anymore. Lately my hands cannot tollerate cold. Like breaking apart hamburger...my hands burn and itch and feel worse upon defrosting. All inflammatory responses I guess. I could go on and on with weird things like this but wanted you to know I believe these issues will resolve in time. Good luck to your son.
Nelda
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Fibromyalgia |swollen lacrymal glnd |chr. HFlash 3yrs |Sinus Pressure | Ph2MP (Independ)Oct 19 08 | 100mg Mino 1-14-09 | Tylenol | | NoIRS|covered up| low lux home | rare outings
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Deb Grabetz
Support Team
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Posted: Sun Sep 21st, 2008 13:05 |
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Welcome to the Lifestyles forum Nelda. Nice to read your posts!
Your sweating...or lack of I should say, is very similar to mine. I've been this way for as long as I can remember and it takes a lot for me to even break a mild sweat. Of course, I never thought too much about it until I was dx'd and read so many others reporting the same. My husband drips like a faucet with mild exertion. Although, I would not prefer not to be drenched in sweat have *heard* it is healthier.
Sure enough while on MP I have noticed my perspiration level changing. Now, not to confuse this with the early soaks of the disease but a true perspiration after exertion. I'm anxious to see, when I am able to exercise again, if there will be a noticeable difference in my response!
Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Chris
Support Team
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Posted: Sun Sep 21st, 2008 17:18 |
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Let me second Knochen's response. I don't worry about the fat on beef or pork, or about chicken skin, and my D-levels have stayed low. (one is an anecdote, two is a trend?)
- Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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expate
Member
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Posted: Sun Sep 21st, 2008 17:40 |
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We have to have some vices.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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eClaire
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| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Sun Sep 21st, 2008 18:56 |
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| While I love bacon, I've avoided that as advised. However, I love turkey sausage and kelbasi (sp). My D levels remain low. It might be helpful to give up this stuff if a person is trying to reduce his/her D levels and is having a difficult time of it. Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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PaulT
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| Location: | Sydney, Australia |
| Posts: | 290 |
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Posted: Mon Sep 22nd, 2008 06:54 |
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I'm with Chris and Knochen
One is an anecdote, two is a trend, Three must be proven ???
Paul
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Sarcoid diag 1/05 - Cough, fatigue, Feb 07 125D=59.6, Oct 07 25D=12, May 08 25D=7.5 avoid light/D, Noirs, covering up, Zinc Oxide on exposed skin.
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Chris
Support Team
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Posted: Tue Sep 23rd, 2008 03:16 |
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The other thing I must note, is that I was careful in the first 3 years on my diet. I did skip bacon and the fat on pork chops, etc.
What I'm noticing now is that my sun flares are much shorter, and it takes a lot more for a dietary lapse to cause trouble, and that trouble is less (though still can be severe for sugar). I think I might be at that point where the CY-enzymes-or-whatever are active and removing extra 1,25-D as they should be.
So, folks who haven't been doing this for 4 years - please disregard my previous note. Or regard it as a you-will-get-well-too note.
-- Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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expate
Member
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Posted: Tue Sep 23rd, 2008 11:46 |
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Don't worry, Chris. You haven't corrupted me. I don't eat bacon since being on the MP. I slipped and had some sausage in a rice dish one time. I do cut off visible fat. Etc.
OK, here's a weird one. For the last week an area on the back of my hand, where I once had a nasty burn, has been hurting. Now it's stopped hurting but itches a bit. Also, the discoloration it once had before it healed has reappeared, though not so dark. Maybe the discoloration has always been there but was not noticeable because of sun exposure (now absent).
So, is this a possible explanation? OK, I burn my hand. My immune system reacts to the trauma by sending troops (or whatever the microbiological equivalent is to soldiers). The troops, amassed in this specific site, do their job and the bit of infection clears up.
But the troops themselves are infected with these L-form bacteria. Those L-form stealth guys slip out into the surrounding tissue and ... chill, hang out, whatever. They're just under the surface, slowly building their troops, waiting for a precipitous event to engage them.
Then, bam, I go on the MP, they start to die, my old burn starts to hurt again.
Sorry for the long post. Too much light exposure this weekend --> second night of insomnia.
dette
Last edited on Tue Sep 23rd, 2008 12:39 by expate
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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Pipistrelle
Member
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Posted: Tue Sep 23rd, 2008 13:59 |
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Odette, please don't apologise! That was such a neat description of how l-forms are likely to get around inside the body, and I could visualise it perfectly.
Isn't it nice to know they are getting zapped?!
Pipistrelle
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Sarc lungs, uveitis '90 dx '92, pred 18 mo '93-'94; D25 31 Nov 06, D1,25 35 Nov 06, NoIRs Feb '07, D restrict Nov 06, low lux home, cover up, light exp work
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expate
Member
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Posted: Tue Sep 23rd, 2008 15:56 |
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Yep, good to feel the pain of war.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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eClaire
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Posted: Tue Sep 23rd, 2008 18:29 |
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Yeah,  dette, I thought that was a really good explanation of how CWD invade injured sites. I've grasped the concept, but that was as clear a description as I've seen. Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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DWD
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Posted: Wed Oct 1st, 2008 15:54 |
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| didn't want to pm and waste mods time about this... but i'm in well into ph3 but turn up as ph2 in these forums. trivial i know... but can this be changed? (can i claim OCD as IP? )
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Rickettsial infection 125D53 (MP Mar07-Feb08 w/o NoIRs or light avoid) Ph1 Feb08 Ph2 Mar08, NoIRs, homebound low lux home with limited outings covered, endep 25D22 4/02/07, 25D Aug08 6.4
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DWD
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Posted: Fri Oct 3rd, 2008 17:19 |
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thank you to the magical pixies who updated my profile to ph3 
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Rickettsial infection 125D53 (MP Mar07-Feb08 w/o NoIRs or light avoid) Ph1 Feb08 Ph2 Mar08, NoIRs, homebound low lux home with limited outings covered, endep 25D22 4/02/07, 25D Aug08 6.4
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expate
Member
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Posted: Tue Oct 7th, 2008 17:47 |
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I've brought this up before as an unusual IP - strong pain on soles of feet. I only experienced it after using computer with unprotected eyes. Well, I've felt it a bit this week but only in my heels.
But, I digress. Reading around in the Phase 2 and 3 progress reports, it seems several people experience severe pain in the soles of their feet. What's up with that?
dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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eClaire
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| Location: | Virginia USA |
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Posted: Tue Oct 7th, 2008 18:01 |
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Hey dette, I've had the bad pain on the soles of my feet pre-MP (chronically, not stop, maddening), and it has gotten much, much better since the MP, although it still flares at times. I will say that what I find to be most useful is to place my feet on a frozen gel pack. Frozen gel packs are nice because they heat up enough so as not to freezer burn your flesh.
Also, when I have a bad, sudden attack of Fibro-type pain, I often times find that by icing my feet, I feel better all over.
It's worth a try.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Support Team
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Posted: Tue Oct 7th, 2008 18:10 |
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Claire,
Those are good suggestions that I haven't tried before. My heel pain has been absent for a couple of months now--but I used to rub mine--or if I was lucky have someone rub them for me--that felt awesome!
____________________
Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Kacey
Member
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Posted: Tue Oct 7th, 2008 20:05 |
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Hi,
I too have had painful soles of my feet. For years I had my husband rub them just about every day. When I got really ill, I researched and found all of my symptoms were those of Lyme disease. Even the painful soles of my feet. I was tested positive and started MP. I am now in Phase III and still have this symptom when I am having peak herx. I think it is a pretty common symptom, but I don't think many people contribute it to being ill. It took me a long time to connect the two. It does get better.
Kacey
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Lyme Meniere's D12553 D2529 Ph1Feb08 Ph2Apr08 ibuprofen NoIRs housebound in low lux home D2517Apr08
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