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Debz
Member
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Posted: Wed Aug 19th, 2009 04:52 |
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Julia,
What a difference in the pictures, yes those Cathelicidins and Beta defensins are defending you! Thanks for sharing yourself.
Here is to the future!
Debz
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Dx-Sarc(collagen disorder)/Herpes Whitlow 03, Neuro,sinus,Hyster,ear. Mr Muscle-hayfever,acute/chron bronchitis, pneumonia,hilar adenopathy,liver tumor&lesion,lg spleen,strep throat,thrush, psyco Mp:4/8/08 mino & Noirs,4/28/08 benicar
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Deb Grabetz
Support Team
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Posted: Wed Aug 19th, 2009 14:26 |
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Julia...
Wow, pictures really do say a 1000 words!
Beautiful! 
Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
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Posted: Thu Aug 20th, 2009 20:26 |
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HAPPY BIRTHDAY!!!!!
Geoff; Juanita; Scott H Summers;
AnneM; Briar Blake; Iona; jcwat101;
John McDonald (big 55); jrfoutin; Julia;
mercuryspice; Natalia; okiebug;
MikG; Markt9452; Sandiegojoy
... and thanks for all that you do to make this journey more pleasant for the rest of us!!!
Julia, Is that the beach at Portstewart?
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Julia
registered
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Posted: Thu Aug 20th, 2009 22:37 |
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Thank you all!
Claire, no, it's Waterfoot, halfway down the East Antrim coast, at the foot of the beautiful nine Glens of Antrim. And I climbed part of the way up a glen to the waterfalls, up and down many steps, only using my sticks where the path was slippery 
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Thu Aug 20th, 2009 22:49 |
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I've not stopped off at Waterfoot before. I'll have to make sure I get there the next time I am over.
Congrats on being able to do all that climbing... in my dreams. Thank you for helping to populate them with your progress.
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Deb Grabetz
Support Team
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Posted: Wed Aug 26th, 2009 13:45 |
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Birthday Greetings....
to MP Members... 
bsrdo
Brigand Blake
Claire Jolly
Cricket
grobbink
hester33
martysfolks
Steven John
wyntez
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Freddie Ash
Member
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Posted: Wed Aug 26th, 2009 13:54 |
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HI ALL
This is Fred in WV. I just want to wish a great big
HAPPY BIRTHDAY!!!!!
bsrdo; Brigand Blake; Clair Jolly; Cricket; grobbink
hester33; martyfolks; Steven John; wyntez
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
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Posted: Wed Aug 26th, 2009 17:19 |
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HAPPY BIRTHDAY TO ALL!
bsrdo
Brigand Blake
Claire Jolly
Cricket
grobbink
hester33
martyfolks
Steven John
wyntez
May this year be healthier than the last!
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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martysfolks
Member
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Posted: Wed Aug 26th, 2009 22:09 |
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| Hi Everybody! Thank you so much for the Birthday Greetings! Didn't realize that I was still considered being in the Marshall Protocol family, since my doc modified my Benicar dosage. Best to you all. Latest developement is that my ANA is finally in the normal range after being 640 & speckled for 4.5 yrs. Dolores P. Rosner----modified Phase 3
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Scleroderma, RA, MCTD, CAD, MP11/07 metoprolol, cardizem, metformin, amaryl, warfarin, slo-mag, aspirin, NoIR's limited outings, covered up, lo lux home 25 D less than 4
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Claire Jolly
Member
| Joined: | Wed Aug 8th, 2007 |
| Location: | WHYALLA, Australia |
| Posts: | 40 |
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Posted: Thu Aug 27th, 2009 00:59 |
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Hello Deb,
Thankyou for the birthday wishes. I'm sorry to say that I no longer talk with you MP people. I pulled out about three months ago. I was in it for 18months or more but decided I wasn't going anywhere. I have my pain back as before and guess I will just have to live with it. I thought I may have seen some inmprovement after being on MP for a while but nothing has changed. I guess I just put MP with all the other medications, specialist etc that I have tried over the last 10years. Thanks again for you bithday wishes. Claire
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Mixed connective tissue disease, pain lower back/legs/feet/joints, 125D33, MP 9/07 ,100mg Mino q72h 02/08. Olmetec 40mg q6h 09/07. no other meds, NoIRs, low lux home, 25D 25.2 03/08.
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jcwat101
Member
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 1056 |
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Posted: Fri Aug 28th, 2009 03:45 |
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Claire,
Sorry you had a difficult time.
We'll do our best to be here for you should you decide to come back.
You might occasionally look at how Aussie Barb is doing. I don't know if you would need an unconventional approach, but that is what she is trying at the moment.
Something else to keep in mind is that there have been a few cases that I have heard about where someone took several months off and then suddenly or gradually started feeling a lot better. They had trouble adjusting their IP, but what happened after their time off the MP showed them they had really benefitted from killing a lot of bacteria during all the time they had been on the MP.
Unfortunately, I think some people in this situation never realize that this is what has accounted for their improvement 2 to 6 months after stopping the MP. They may attribute the improvement to something else they started after the MP-- something that might have no effect or be palliative.
Good luck
Joyce Waterhouse
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Sunbeam
Member
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 359 |
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Posted: Wed Sep 2nd, 2009 05:11 |
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Belated Birthday wishes to all those people whose birthday fell in August and that I didn't get to wish a happy day.
I do hope you all enjoyed your special day,
Best wishes,
Lynn
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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Claire Jolly
Member
| Joined: | Wed Aug 8th, 2007 |
| Location: | WHYALLA, Australia |
| Posts: | 40 |
| Status: |
Offline
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Posted: Thu Sep 3rd, 2009 02:10 |
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Thanks Joyce,
I am seeing a sports masseur and hope to see some good results. He said I'm all knotted up and we can overcome that with massage. I will see how I go but still have the MP address handy. I felt much better on the MP but felt a bit bogged down with meds. I would prefer to just have Paracetamol on the odd occasion. Bye for now and thanks for you support over the last 18 months, Claire
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Mixed connective tissue disease, pain lower back/legs/feet/joints, 125D33, MP 9/07 ,100mg Mino q72h 02/08. Olmetec 40mg q6h 09/07. no other meds, NoIRs, low lux home, 25D 25.2 03/08.
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jcwat101
Member
| Joined: | Tue Jul 20th, 2004 |
| Location: | Pasadena, USA |
| Posts: | 1056 |
| Status: |
Offline
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Posted: Thu Sep 3rd, 2009 16:33 |
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Hi Claire,
I wonder if the masseuse will work on trigger points. I have found it helpful to have on hand one or two books on trigger points (e.g one by Claire Davies). One can work on them at home or use the information in the books to supplement what a therapist does.
Hope to hear from you again sometime.
Good Luck,
Joyce
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20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Deb Grabetz
Support Team
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Posted: Sat Sep 5th, 2009 12:45 |
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Happy September
Birthday
to our Freddie Ash
Thanks for all your
contributions to the
birthday thread!
A healthy and happy
year ahead Freddie!
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Deb Grabetz
Support Team
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Posted: Sat Sep 5th, 2009 12:48 |
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Hi Claire,
It's good to hear from you. I've seen many who take a break/leave the MP and then later return because they realize how much better they were feeling or as Joyce notes realize improvements. Either way, wishing you good things in all you do! Please keep in touch!
Deb
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Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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Freddie Ash
Member
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Posted: Sat Sep 5th, 2009 15:57 |
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HI DEB
This is Fred in WV. Thanks for the birthday greetings. I want to thank Dr Marshall and his Marshall Protocol for making it to my 70th birthday. After my second my bypasses calcified I figured that I was in the end stages of sarcoidosis because other things would be calcifiing and I would die soon.
But thinks to Dr Marshall and his great work he has done bringing the Marshall Prorocol to all of us so we can have a second chance to life I have made it this far in life. Who knows, I may live to be 120 now.
Thanks to all.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
Offline
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Posted: Sat Sep 5th, 2009 19:25 |
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HAPPY BIRTHDAY FREDDIE!!!
THANKS FOR MAKING THIS A MORE ENJOYABLE JOURNEY FOR US ALL!
HAVE A GREAT YEAR!
Claire
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42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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Freddie Ash
Member
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Posted: Sat Sep 5th, 2009 20:06 |
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HI CLAIRE
This is Fred in WV. Thanks for the birthday greetings and all the kind words. After I found out I had sarcoidosis and I started to find out things about it and the doctors knew little about it I started to learn about it and trying to help others who had it. I had people with it call me to tell me their doctors wanted to know what I had in my files about sarc. I then made copies of what I had ans started to give them to the ones that wanted them
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Sunbeam
Member
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 359 |
| Status: |
Offline
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Posted: Tue Sep 8th, 2009 08:16 |
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A Very Happy Birthday Freddie.
You are so encouraging to all of us,
Lynn
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CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D 6 2/08
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