 |
| Author | Post |
|---|
Carricol
Member
|
Posted: Sun Oct 4th, 2009 04:45 |
|
| Stop and think about it. We have acid in our stomach for only one reason. We need it to properly digest our food. I cannot help but believe that artificial suppression of this natural process with drugs is going to have some negative consequence.
____________________
Sarcoidosis 125D38 Ph1 Nov07, fluoxitine Lithium Synthroid 5-HTP tyrosine, NOIRs lite exp r/t commute cover up, Ph2 Jan08 25D9 Feb08
|
laura1814
Member
|
Posted: Mon Oct 5th, 2009 09:03 |
|
I think you all are right! I know my heartburn issues have significantly reduced since being on the MP. Frankly I just assumed that the MP would correct it along with everything else. 
I will only take Nexxium again if I need it to sing. Until then I am fine without it, though I do occasionally take ranitidine and enzymes if I eat something difficult. But today I had chili and haven't taken either (though I might need something when I lie down).
As an aside, Nexxium is much more expensive than my MP antibiotics.
____________________
CFS, EBV, PCOS, POF, TMJ, hypoglycemia, hyperlipidemia, MP Ph1 1/08, Ph2 4/08, Ph3 1/09; enzymes, & ranitidine PRN, NoIRs, low lux home, limited outings, covered up, 1,25D=37, 25D=9.
|
laura1814
Member
|
Posted: Mon Oct 5th, 2009 09:05 |
|
I think you are all right!
I wrote more but my browser crashed. 
Edited to add: will you look at that! Last edited on Mon Oct 5th, 2009 09:08 by laura1814
____________________
CFS, EBV, PCOS, POF, TMJ, hypoglycemia, hyperlipidemia, MP Ph1 1/08, Ph2 4/08, Ph3 1/09; enzymes, & ranitidine PRN, NoIRs, low lux home, limited outings, covered up, 1,25D=37, 25D=9.
|
Chris
Support Team
|
Posted: Wed Oct 7th, 2009 20:49 |
|
Nexxium and Prevacid (and probably others) were first investigated as ulcer remedies. Then, when ulcers were found to be of infectious origin, all of sudden we get lots of advertisements about GERD and Acid Reflux and how Nexxium and Prevacid fix these conditions. Prior to the B. Marshall discovery of the H.Pylori link to ulcers, these were considered pre-ulcerous conditions.
It still amazes me that Doctors haven't jumped on the idea that if ulcers were infections, then maybe all the conditions previously considered to be pre-ulcerous conditions might also be infectious in origin.
--Chris
____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
|
Freddie Ash
Member
|
Posted: Wed Oct 7th, 2009 21:14 |
|
HI CRIS & ALL
This is Fred in WV. Cris, I am glad you brought that up about the doctors jumping on the idea of bacteria causing ulcers. I have brought this up to doctors when talking about the MP to them and they look at me like I do not know what I am talking about, that ulcers are caused by bacteria.
I am not sure that all doctors are aware of ulcers are caused by bacteria yet.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
____________________
Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
|
eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
Offline
|
|
Posted: Thu Oct 8th, 2009 07:48 |
|
Oh Chris, I am so glad that you brought up that issue as you have explained why my stomach hurts if I take ibuprophen, something I had been able to handle pre-MP.
You see... I was getting an ulcer about 30 years ago and it abated. Then after I became totally disabled, I was visited by GERD symptoms. Now I realize that my current stomach pain is IP!!! Yeah! Couldn't figure it out because I hadn't had stomach pain in 30 years. Sheesh! That's brain fog for you!
Claire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
|
Sedona
Member
| Joined: | Sat Feb 11th, 2006 |
| Location: | Alabama USA |
| Posts: | 136 |
| Status: |
Offline
|
|
Posted: Wed Oct 14th, 2009 05:51 |
|
Hello all
It's been four years and eight months and I know that I am totally better than before.
When I first started I thought two years and then back to school to finish my degree and then back to work. But now it is one day at a time. Because of the nature of this illness who can be sure what the future holds. There is no cure there is only relief. That would have depressed me two years ago but now that I know what relief feels like I can't complain. I can't believe that today, I can lay down and get a good nights sleep without waking up gasping for air. That I am not sleeping in the shape of an L with the vertical portion of me on the head board. My entire body is in a horizontal position. Ahhhh so good. There are four things that I have today that I lost to this disease:
1. I can laugh now and not be scared that I will end up in a coughing spasm which would make people nervous. Finally my friends knew not to ask me if I was ok. They got used to the spasms.
2. I can suck in air and not end up choking or having cough spasms because my lungs couldn't handle the immediate thrust of air.
3. I am able to walk to my moms house at an even pace without stopping to catch my breath every step of the way. Same for walking anywhere else - no one has to wait for me to catch up.
I wake up with a feeling of having a purpose and no longer linger in bed from being tired and having soar muscles. Yes, sometimes I still wake up to coughing spasms (healing lungs and IP) before starting my day. But they are not as severe or disruptive and don't take nearly as long to reach completion as before. I know that will get better.
My acid reflux comes back but that is usually because I ate something completely wrong. I had it recently and it was because I ate wrong and late. I also have to curb the amount of wine I have. I made a Lasagna which I thought gave me permission to has a glass of Pinot Noir . But my stomach said otherwise . I still have a ways to go with the MP. The lasagna was good too. I not only used Italian sausage but I also used ground pork which is what was used when I was a kid at my friends house. The Italians I grew up with ate a lot of pork. It really is a tasty animal but reeks havoc on the intestinal tract. My acid reflux is MP-WIP for sure. Still, most of the time I can eat without worry these days of definite stomach aches and pain.
I am truly happy with my current situation. Completely different from Feb-2006 and before. Completely different. Being that sick completely frightened me and I've never been frightened like that before. I'm a bit of a control freak and Sarcoid took the wind out my sails for sure. I am just happy with what I have so far compared to before. Sarcoid taught me that I don't control anything. I like life a lot more now as I am no longer in pain; tired; agitated and burned out from working while sick. I am at peace with lots of things now. The MP has been a gift for me in more ways than one. Today is much more than I could ask for - Far more than I had before.
Hi Fred - good to see ya
Last edited on Wed Oct 14th, 2009 05:59 by Sedona
____________________
Sedona: Neural/Lung Sarc/ biopsy 9/96| Feb06 avoid light comm Ph1| 1,25D=60 25D=27 Nov06| Ph2 05/06| Ph3 11/06 |4/9/08 25,D=7 1,25D=54| homebound low lux NoIRs| mucinex cont. oxygen|
|
Juanita
Member
| Joined: | Thu May 3rd, 2007 |
| Location: | Alberta Canada |
| Posts: | 529 |
| Status: |
Offline
|
|
Posted: Fri Nov 6th, 2009 17:43 |
|
What a lovely thing to read this morning, Sedona! Congratulations on your improvement!!
Reading your post made me very, very happy. Thanks!
____________________
MCS, CFS, FM, CS, DH, stroke neuro, seizures, skin ca, IBS, eczema, irregular heartbeat| NoIR avoid light and D/ On MP 27 months
|
Sedona
Member
| Joined: | Sat Feb 11th, 2006 |
| Location: | Alabama USA |
| Posts: | 136 |
| Status: |
Offline
|
|
Posted: Sat Nov 7th, 2009 17:06 |
|
Hello Juanita
Yes, despite doing stuff to risk an IP response I am doing fantastic compared to when I started.
The MP is definitely where it's at babbeee.
____________________
Sedona: Neural/Lung Sarc/ biopsy 9/96| Feb06 avoid light comm Ph1| 1,25D=60 25D=27 Nov06| Ph2 05/06| Ph3 11/06 |4/9/08 25,D=7 1,25D=54| homebound low lux NoIRs| mucinex cont. oxygen|
|
eClaire
Member
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
| Status: |
Offline
|
|
Posted: Sun Nov 8th, 2009 13:51 |
|
Ditto what Juanita said Sedona. It is always great to hear of someone making such incredible progress. A real inspiration to those of us who feel like we are moving at a snail's pace. Thank you for posting! Claire
____________________
42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
|
Current time is 12:45 | Page:   1 2 3 |
|
|
|
|
