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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 1417 |
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Posted: Thu Mar 11th, 2010 21:48 |
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I guess I need to make this clear: We're talking about what to do to the windows when we are well. We're talking about loving having a darkened bedroom and wanting to keep it semi dark but still be able to enjoy the experience of looking outside WHEN WELL.
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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patrickburke Support Team

| Joined: | Mon Jul 12th, 2004 |
| Location: | United Kingdom |
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Posted: Sat Mar 13th, 2010 00:42 |
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Well, I have no eye light sensitivity now but I still have a blackout blind and blackout curtains in my bedroom. They just help me to sleep better. Guess that D helps to wake me up in the morning?
And if I want to relax I somehow find it easier to do so in the dark.
D is a curious thing lol
Pat.
Edit I need a new avatar lol
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eClaire Member

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
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Posted: Sat Mar 13th, 2010 03:05 |
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Thanks Pat. That is good to know. Right now, my black out material is literally velcroed to the window panes (allowing the windows to be opened at night). At some point, WHEN I AM WELL, I'll need to come up with another solution. Perhaps drapes made with a black out lining so I can open them up in the morning. That you like it being very dark at night is particularly meaningful to me since insomnia is one of my worst symptoms. I don't need to have light at night interfering with that, er, I mean sleep (not my insomnia... yes, I want the insomnia interfered with to the point of getting a good night's sleep).
Last edited on Sat Mar 13th, 2010 03:07 by eClaire
____________________ 42mo on MP; CFS FMS MCS COPD hypermob IBS/GERD osteopor; 125D48 25D<4;
NoIRs during most daylight outings; Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08
* Ph2.Oct-Nov08 * Ph1.Jan09 * Olm.alone.Jun10
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patrickburke Support Team

| Joined: | Mon Jul 12th, 2004 |
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Posted: Sat Mar 13th, 2010 12:36 |
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Claire,
I found that the best way to get a good sleep was to firstly make sure that my bedroom was cool and dark even street lights kept me awake. Secondly, make sure that for as long as possible before bedtime I was also in the dark, relaxing a couple of hours or more was preferable. I had discovered this even before the MP when I was an insomniac. I used to sleep single hours per week.
You could also try a dab of SL benicar about 30 minutes before bedtime too.
Pat.
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Deb Grabetz Support Team
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Posted: Sat Mar 13th, 2010 13:16 |
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patrickburke wrote:
And if I want to relax I somehow find it easier to do so in the dark.
D is a curious thing lol
Pat,
This is so true. My bedroom darkened is an absolute haven and will settle just about anything neuro that I have going on, right down.
We bought a wii about a month ago and I usually work out on it and then take a warm shower at night. I sleep like a baby on most nights, only interrupted by my Benicar alarm. Somewhere I just read that a warm bath or shower gives us a good nights sleep but for those who are still sensitive to the heat of the water, may not be such a good thing eh??
Growing up my parents ran a business at our house and for security reasons had two huge mercury lights attached to the roof. My bedroom took direct light from this mercury light and this is how I slept. It has certainly crossed my mind if this constant exposure had any affect on my health. My room was always "lit" up at night and I'm sure played an part in interrupting my sleep, who knows what it may have done to my D levels during that time?!
D IS a curious thing!!!
____________________ Sarcoidosis/lungs, lymph,liver, GI, neuro, D12542, Ph17/07, MPh2 9/07, B12, cover up, NoIRs,return to work after 2 years off- 4/07D2511
5/09 D25<4
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